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  1. Expecting Baby Girl With CDH in September Blog #2

    Quote Originally Posted by CarlyD View Post
    Had my ultrasounds today, Jasmine looks great.. heart looked good, and no sign of hydrops right now which is what they are looking for. I got my doctor situation straightened out, I will be going to Mass Genn in Boston for everything, ob, baby care, delivery.. NICU.. ect.. And will have my ultrasounds every 2 weeks in Maine. I feel good about our appt today.. Trying to stay positive, and hope to learn more about Jasmines CDH when we get to Boston, I'm not sure how severe her case is right now.
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  2. Expecting a CDH baby in September



    Hello everyone, my name is Carly and we recently found out that our baby has CDH. We went in for our routine ultrasound, at 22 weeks.. We are expecting a baby girl, her name will be Jasmine Raine. We found out on 5-2-14, at my ultrasound they told my husband and I that she has left sided CDH, with only a herniated stomach at the moment. They wanted me to decide if we wanted to terminate the pregnancy, I said No, what kind of person would I be not to give my baby a chance at ...
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  3. A month and a day

    It's been a month and a day since her birth and death day. I feel like I just keep reliving that day over & over again. I find myself day dreaming about it all the time. I have those regrets of what I shoulda/coulda done but I can't beat myself up over it. I feel like it is hard to talk to my friends and family because they are tired of hearing about it. Ooorrrr... like in the case of my nana (grandma), she says that I'm putting on a front and I'll break down later. I honestly don't feel like ...
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  4. New to site

    Hello. My name is Alexandra and I was born with CDH when I was just hours old. I was given a 5%chance of living and spent three months of my life in the hospital. I am 21 almost 22 and I want to meet people mu age with CDH. Please message me thanks.
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  5. Riley's Story

    When I was 18 weeks I found out Riley had CDH. From then on out I doctored in Rochester. He was born October 29th, 2013 at 11:04am. He weighted 7lbs 12oz and was 20in long. They immediately had to put a breathing tube in and rush him to the NICU I barely even got to see him. When I visited later that night he was on a machine called the Ocillator. In the middle of the night I got a phone call...they needed to put him on ECMO because his lungs and heart weren't strong enough. On Novemeber 12 he was ...
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