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  1. Julian on Zantac again and doing much better

    Hi there- Im pretty new to the forum, and this is my first blog post. My son Julian was born with CDH in July 2011. We did not know he had CDH until he was 3 weeks old, losing weight fast and not keeping any thing he ate down. He was prescribed zantac by our pedi before we knew what was actually wrong. After Julians surgery, he was eating really well- but probably a month afterwards he started to scream and fight every time I tried to feed him. I guess I didn't really realize that he could still ...
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  2. update: Amairani Vianney

    Surgery was done!!! all came out great! super happy... shes recovering now! i would like to thank everyone for there prayers!!
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  3. 2 more weeks

    Our csection is scheduled for the 6th, right at 39 weeks. I am so not ready for this, but what momma is? I am however getting excited to meet our little guy. Not too excited though, he needs to stay put...we have been having issues with contractions, and I had to go to labor and delivery to get them stopped. I was there for 6 hours, got for shots, and a dose of procardia before they quit. Now I am on 20 mg of the procardia every 4 hours. Not looking forward to 2 more weeks of the meds, but ...
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  4. researching cdh and vitamin a

    So while searching the internet for possible causes or links to cdh, i was looking at the possible link between cdh and vitamin a deficiency. As i started putting more and more together I started seeing weird patterns and even though it's not confirmed this is still hardly a coincidence i think. My gallbladder was removed about 1 year after i had my son ...they said the pregnancy caused the gallstones and i had to get it taken out. After looking into the vitamin a deficiency ...i looked into ...
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  5. another rollercoaster day of emotions ( like i haven't had enough )

    So we have a beautiful little 4 year old boy and who to this day has just been perfect besides all the little things that happen to kids. Last night while on here reading all the other parents' stories, i came across a mom who had a son who was 5 and presented with late presentation cdh. After that i got into the forum where so many people are dealing with having another child with cdh. My son for the past 2 months seems to have been sicker than normal, first with strep, then right when we lost ...
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