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  1. my 10 year old

    Colton was born right side hernia. At 5 days did a repair. Then at 6 months they added a patch. As his body grows the patch will not. He has heart burn pretty bad.

    This past year I have had 2 different x-rays done because of concern. First one he was having sharp stabbing pain. X-ray looked good. We followed up with the Surgeon. He said he has no reason at this time to have any concern. He can not do explorative surgery. He needs more reason for a surgery. Like puking green bile, ...
  2. Son due 11 27 2017 w/ Left-CDH, ultrasound show conflicting isses w/ eyes?

    Our son was diagnosed at 20 week US w/ LCDH. I had amnio done and array came back negative.
    We also had extensive genetic testing prior to becoming pregnant (and have 2 beautiful healthy sons).
    And, I also had the DNA blood test done at 12 weeks, again, all negative.

    We realize there aren't tests for some of the syndromes, but, we are really worried. They ultrasounds I get each week al seem to indicate something different. One said no globes present, one ...
  3. HELP! GI Issues

    I'm hoping there is someone that has dealt with what we are currently going through.

    Our Aiden is 3 months old yesterday. By the Grace of God we came home from the hospital almost a month ago. We are A LONG way away from the 30% chance of survival we were given prior to birth... however, who knew surgery and the NICU would be the easy part!

    Aiden is a Left Sided CDH survivor- his stomach, spleen, intestines and part of his liver herniated in to his chest.
  4. CDH Survivor and Pregnancy


    I am a right-sided CDH survivor. My husband and I are attempting to start a family. This past December we had a miscarriage. We have had many doctors tell us we will be a high risk pregnancy with my health. I would love some advice or experiences if anyone would be willing to share as we are scared!

    My doctors told me they think I will be in a lot of pain and discomfort the last 6 weeks of my pregnancy if I can get pregnant with all the scar tissue stretching ...
  5. Baby Boy Diagnosed with CDH at 35Weeks

    Hello, My name is Shawnay. I had an ultrasound yesterday confirming that our son has CDH. I am 35 Weeks pregnant so this is all happening very fast. The reason for the late diagnoses is because my OBGYN never ordered an ultrasound after we found out the sex at 15 wks. I requested a new doctor and she set us up for one right away. Good thing. We are set to go to The Fetal Care Center in Cincinnati, Ohio the beginning of next week to do further testing and meet with our care team. We are still trying ...