Recent Blogs Posts

After three miscarriages, we were having our little rainbow baby, Luca, and he had CDH.

Our baby boy Luca was born Friday, June 18th at 37 weeks + 2 days. He had right-sided CDH with liver up, and less than 1 LHR. His prenatal ultrasounds and MRIs were always good, his heart was strong and I had no complications during pregnancy except a short cervix and scheduled c section due to a prior myomectomy. We had been preparing since we got the diagnosis, on week 17. We had gone to CHOP, ...

Hello All,
I just wanted to say that I am so very proud of my cherub who will be graduating college in one month! She was not expected to live her ordeal with CDH, or to be able to get through school reasonably. She has proved in many ways she is a fighter!
It has been 4 long years in college, and her trying to hold an awareness event for CDH. Her moment has finally come. With a lot of hard work and determination, she will be doing a test run of an awareness to CDH tomorrow ...

Hi, I'll go ahead and welcome myself back here. I'm Tasha. I'm a 32 year old who has spent the last 3.5 years doing the dirty mental health self-care that no person wants to face. I am divorced now and co-parent a 12 year old son, Dante. I know that I am very privileged to be his mother. I wish I could lie and say I have strong memories of anything I've said or done relating to my life-changing experience with CDH, but I cannot. I am forever grateful for the Welcome Packet I was sent when I was ...

Hello,
I am 28years old. My CDH Survivor will be 8 on August 2nd. My story started at 19 years old pregnant with my first child. A few months later i turned 20. When I was 30 weeks pregnant i went in to have a 3D/4D ultrasound and immediately i noticed something wasn’t right. The tech would not speak and she kept going over the same spot. Though at the time i had no medical background i knew something was wrong. Next thing i knew i was having a dr appointment and it was confirmed my son ...

Happy CDH Cherub Day to my special hero and all cherubs!💖