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  1. My cherub story

    Hello,
    I am 28years old. My CDH Survivor will be 8 on August 2nd. My story started at 19 years old pregnant with my first child. A few months later i turned 20. When I was 30 weeks pregnant i went in to have a 3D/4D ultrasound and immediately i noticed something wasn’t right. The tech would not speak and she kept going over the same spot. Though at the time i had no medical background i knew something was wrong. Next thing i knew i was having a dr appointment and it was confirmed my son ...
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  2. My Cherub, my Hero

    Happy CDH Cherub Day to my special hero and all cherubs!💖
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  3. My Sweet Angel Baby Boy

    by , 06-13-2019 at 06:58 PM (My Little CDH Angels Story)
    This will be the very first post I do here. My son was born with sever RCDH. He was born with hardly any lung tissue. He was placed on ECMO for two weeks. It was the most horrible thing that i had to see my only child go through right after birth. He had his repair surgery while one ECMO and every thing came out good. During his stay at the hospital he was having his good days and extremely bad days. Every day it would be a different thing. Unfortunately do to his sever RCDH he developed Pulmonary
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  4. First Child.

    Hi. First time here. I am 22 weeks and 5 days. And I just found out that my son has CDH. It's my first child. I am a little scared. 😯😕
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  5. River James

    So its been a while since ive gotten on here. I lost a daughter at 26 weeks. (Stillborn) but im happy to say i had a son on 7-6-2018 he also has had cdh. We were lucky he was born at 29 weeks had his first surgery at 3 days old. Happy to say we are finally out of the NICU!!! Side note i also had cdh when i was a baby!
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