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  1. Broken hearted

    Last weak I lost my husband Martin suddenly. He went into hospital for a routine procedure and something went wrong and he passed away on July 2nd. We have always supported each other in raising our 15 year old daughter born with CDH. Now I feel completely alone. Please keep me in your thoughts and prayers
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  2. Missing You, My Liam!

    My Dearest Liam,

    I really don't know how to articulate how much I miss you! There are days when life seems more bareable, but nothing is easy. The day you passed was the worst day of my life- and I know the worst day of Daddy's and Landon's too. I remember every detail of that day and each detail hanuts me. The most haunting memory is when I called your Nonna and Grandpa to tell them to come to Boston quickly because you weren't going to make it. The sound of Nonna's voice haunts ...
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  3. Thank You!

    Thank you to everyone at CHERUBS for your support and kindness on Liam's Angel Day! Yesterday marked the 2-year anniversary of Liam's passing. I hate to even use the word "anniversary," as "anniversary" often implies a celebration of some sort and Liam's passing is not something to celebrate. It's hard to believe that it's been two years since we lost Liam. It truly seems like only yesterday in the sense that I remember every single detail of that day, but it seems like forever ...
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  4. Maliyah Lee my first pregnancy & CDH

    Im Michelle, im nineteen years old & 32 weeks pregnant. My daughter Maliyah has been diagnosed with CDH she has one of the worst cases, she has a 10% chance to live. Hers is on the right side which is quite rare. her intestines & liver are already up in her lungs. Anyone advice would be helpful. Im so scared. This is my first child & im so in love with my daughter i really dont want to lose her but i know that its a high possibility it could happen. Any words of wisdom or advice is very ...
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  5. Gavins here!!!!!!

    Well I haven't been on in a few weeks, but I'm proud to announce that baby Gavin was born 6/11/2013 @ 9:57 pm!!!!!!!! ♥♥♥♥♥♥♥ he's been in the NICU ever since, they did the repair surgery on friday afternoon. He still has a patch on his stomach because his bowels couldn't entirely fit in his abdominal cavity... he has been stabilized and on meds to help with his blood pressure, and today he just got on Nit 0 for his pulmonary hypertension. They said ...
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