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  1. Northwest Family Get Together May 2012

    Washington is in the process of organizing a CDH family get together with families in Oregon. How Exciting!! Scheduled for May of 2012, stay tuned for Details!!!
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  2. A Tough Morning

    My Dearest Liam,

    Momma is having a difficult time this morning. It's so hard to see people that I haven't since I was pregnant with you. It's even harder when they don't know that you passed away. I can't talk about your passing without melting to a puddle of tears, so I just smile and say, "He's perfect! He's gorgeous, healthy, happy, and growing so fast." It breaks my heart to do that because I know the truth. I am so blessed to have the support of the women I work with! ...
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  3. A Little Miracle

    My son was born with a Left Congenital Diaphragmatic Hernia in January of this year. He was placed on a vent, then an occilator and then ECMO for 17 days with nitric oxide. He had his repair done on day 2 on ECMO he was very critical they doctors gave him less than a 10% chance to survive. Now he is 9 months old he is in the hospital now in the PICU before we left her in April to go home the doctors thought that he might have reherniaed on that left side. We came for a cough on Monday of last ...
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  4. An Apology

    I am not very technologically savy, so I cannot figure out to delete a blog entry that hurt a very good friend of mine. I wrote the blog in a fit of sadness, devastation and fear, never imagining that this friend would read it. I joined this site to connect to families who know exactly how my husband and I feel. This site has been a huge blessing and the women I have met and connected with all hold a very special place in my heart! I never expected others to read it. The truth is, it is impossible ...
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  5. Back in the hospital, at Shands.

    Bre'ahna was admitted back to Shands last night.
    She has been coughing and retching really bad for a few days.

    Diagnosis is left lung pneumonia, which is her bad lung.
    Discharged with heavy doses of antibiotics. Hope and pray that this will do the trick. lol... been there done that, back to hospital next day....... I don't like seeing residents with my angel, I want my doctors, but being a teaching hospital thats what you get. I'm getting frustrated because my baby ...
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