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  1. Pregnant Again after a CDH loss

    Hello whoever is reading this.

    My name is Sandra and I am a proud mother to a CDH angel, my daughter Julia. Julia passed away after 22hours of being on this earth. She passed away in April and these passed 8 months have been so difficult for my family and I but we are so hopeful for the future.

    We found out a couple weeks ago that I am pregnant and expecting our second child (Julia was our first). It is hard not to think of what can go wrong, but I know we have to ...
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  2. CDH/ DORV with VSD

    Hi all I am Haley from a small city in Alabama called Reeltown. I am currently 26 weeks pregnant with my second beautiful baby girl named BryLee Khole. On November 9, 2016 my heart was shattered when I went in for a repeat anatomy scan and the tech detected a possible CDH and said her heart had slightly been deviated. I was sent to a high risk doctor at the University of Alabama at Birmingham (UAB) for a more in depth ultrasound.. While at UAB the doctors did the hour and a half long ultrasound ...
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  3. Malrotation/pain in scar area

    Hello, mom to left sided CDH survivor born on 5/23/2002 He has had no issue with his CDH post repair at birth. Small things here and there, slight pigeon chested when he was younger, GERD, hydrocele repair at 9 years old. Over the last few weeks he has said he has pain in the area around his scar site. We finally took him in because the pain was going from irritation with him, to pain. THey said he was constipated. Sent him home. I didnt feel comfortable with this, and requested an Xray. THe xray ...
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  4. CDH survivor

    Hi I'm Laken Stepp. I was born June 18th, 1992. I was born with CDH at birth. I was born 2 weeks early due to my mother having a csection, when I was born they noticed my breathing and done further testing and determined I had CHD and flew me to a near by hospital where I underwent surgery to build a diaphragm after surgery they didn't think I was gonna make it through the night, the next morning I was flew to another hospital to be put on ECMO machine where I was on it 5 days & spent the next ...
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  5. Severe Left CDH+ Pulmonary Hypertension

    My name is Morgan Nuchols, I was born July 26th,1993. Had a undetected Severe form of Left Congenital Diaphragmatic Hernia, born 2 weeks early, mom's water leaked for 3 days until I was born at Torrance Hospital. After I was born, turned blue couldn't breath, was helicoptered to Huntington Hospital that was the closest that had a ECMO machine. Was on that for a week until first diaphragm hole got fixed. Had 0 diaphragm muscle and 1/4 left lung size, at 3 months old they repeated that operation. ...

    Updated 08-03-2016 at 07:42 PM by Morgan Nuchols (Left Congenital Diaphragmatic hernia & Pulmonary Hypertension)

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