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  1. finding survivours

    Im a chd survivour and would love to here from other survivours. Not sure how to use this blog as such. Click image for larger version. 

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    Updated 07-21-2016 at 10:37 AM by Caroline Oakley

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  2. Starting a family

    Hello-

    I am a fellow right sided CDH survivor. I am 25yrs old. I recently just got married and have started to talk about starting a family. I have met with doctors to discuss my risks and they have stated that I will be a higher risk pregnancy. If any fellow CDH survivors who has gone through a pregnancy have an advice or can share their experience I would greatly appreciate it. I am scared to go through a pregnancy with all these risks the doctors are throwing at me.
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  3. Gloria Joyce

    Prayers for my daughter & son-in-law Megan & Francisco Meza please. She will be induced on next Wednesday June 15th. If Gloria is head down they will induce. If she is still breach then she will have a cesarean. Please pray for little Gloria will need all the prayers possible and her family to be strong for her. Thanks one proud nana.
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  4. Haydn Daniel

    Our little Haydn was born on May 6, 2016. His due date was July 28, 2016, but he decided he wanted to make his appearance early. I was admitted to the hospital on April 30th bc of pPROM and put on hosptial bedrest. We had hoped I would stay pregnant until 35 weeks, but Haydn only waited until 29 weeks and 1 day.

    The night I went into labor was an emotional one. I felt scared and guilty that it was happening so early. I was excited to meet our little one, but it also came with fears ...
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  5. Both hyplastic left heart syndrome and cdh

    Yesterday I meet with the neonatologist and he told me my baby has a zero percent chance of survival after she is born. Because she has two diagnosis that work against each other. I am trying to find at least one person who has had a baby with both. So far I have been unable to find any research or anyone who knows about both conditions. the doctors are really pressuring me to make a decision now before baby is born so we can have a plan. But I want to fight but part of me feels like I should enjoy ...
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