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  1. My Sweet Angel Baby Boy

    by , 06-13-2019 at 06:58 PM (My Little CDH Angels Story)
    This will be the very first post I do here. My son was born with sever RCDH. He was born with hardly any lung tissue. He was placed on ECMO for two weeks. It was the most horrible thing that i had to see my only child go through right after birth. He had his repair surgery while one ECMO and every thing came out good. During his stay at the hospital he was having his good days and extremely bad days. Every day it would be a different thing. Unfortunately do to his sever RCDH he developed Pulmonary
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  2. First Child.

    Hi. First time here. I am 22 weeks and 5 days. And I just found out that my son has CDH. It's my first child. I am a little scared. 😯😕
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  3. River James

    So its been a while since ive gotten on here. I lost a daughter at 26 weeks. (Stillborn) but im happy to say i had a son on 7-6-2018 he also has had cdh. We were lucky he was born at 29 weeks had his first surgery at 3 days old. Happy to say we are finally out of the NICU!!! Side note i also had cdh when i was a baby!
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  4. New Diagnosis

    Hi all,

    We recently found out at the 20 week ultrasound that we are expecting a boy with CDH. This is our second child and our first boy is healthy. It has been a very hard time as I am a neonatologist and have taken care of infants with this difference and seen good and bad outcomes. I started a blog and am really looking for other parents for support as well.

    Left sided, edge of liver up, LHR 1.3-1.4. Will be delivering at UCSF. Due date 8/20/18.

    stinastillwell.blogspot.com ...
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  5. Alexis jr. aka AJ CDH Journery

    Me and my wife were expecting our second child. We were very excited since we have a 5 year old daughter that has been begging us for a sibling. We had a gender reveal party with family and friends. I cut into the cake and whem i saw the blue feeling I was overcome with joy and the room bursted out into celebration it was one of the most memorable days in my entire life I was going to have a son. 3 months into pregnancy we went for a 3d ultra sound where we discovered our son was diagnosed with ...
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