Stay Connected

View RSS Feed

Recent Blogs Posts

  1. HELP! GI Issues

    I'm hoping there is someone that has dealt with what we are currently going through.

    Our Aiden is 3 months old yesterday. By the Grace of God we came home from the hospital almost a month ago. We are A LONG way away from the 30% chance of survival we were given prior to birth... however, who knew surgery and the NICU would be the easy part!

    Aiden is a Left Sided CDH survivor- his stomach, spleen, intestines and part of his liver herniated in to his chest.
    ...
    Categories
    Uncategorized
  2. CDH Survivor and Pregnancy

    Hello-

    I am a right-sided CDH survivor. My husband and I are attempting to start a family. This past December we had a miscarriage. We have had many doctors tell us we will be a high risk pregnancy with my health. I would love some advice or experiences if anyone would be willing to share as we are scared!

    My doctors told me they think I will be in a lot of pain and discomfort the last 6 weeks of my pregnancy if I can get pregnant with all the scar tissue stretching ...
    Categories
    Uncategorized
  3. Baby Boy Diagnosed with CDH at 35Weeks

    Hello, My name is Shawnay. I had an ultrasound yesterday confirming that our son has CDH. I am 35 Weeks pregnant so this is all happening very fast. The reason for the late diagnoses is because my OBGYN never ordered an ultrasound after we found out the sex at 15 wks. I requested a new doctor and she set us up for one right away. Good thing. We are set to go to The Fetal Care Center in Cincinnati, Ohio the beginning of next week to do further testing and meet with our care team. We are still trying ...
    Categories
    Uncategorized
  4. Damion is 5yrs old now!!!

    by , 03-26-2017 at 08:07 AM (Our son damion and his life living with congenital diaphragmatic hernia!!!!!)
    Damion is doing great, no complications or surgeries since he was a couple of weeks old. Damion has been in preschool since he was 3 going on 4 so this is his second year and he is doing great. I had a speech specialist test him because he is tongue tied and he had no problems that they were concerned with. My son amazes me everyday and everyday I think will he have to have another surgery because he is growing and getting so big but still no surgery and what concerns me is why is it that he is ...
    Categories
    Uncategorized
  5. 02/08/17

    My family of three recently found out our 4th has CDH. We went in for a routine 20 week check. We were informed that our daughters heart was pushed near her right lung in the right chest cavity.
    We were sent to Avera Maternal Fetal Medicine in Sioux Falls S.D.. They shared with us our diagnosis and and some of our options. We are scheduling a meeting with a pediatric surgeon sometimes soon. The doctors said they won't be able to tell the severity until later in pregnancy.

    ...
    Categories
    Uncategorized