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  1. CDH Awareness event

    Hello All,
    I just wanted to say that I am so very proud of my cherub who will be graduating college in one month! She was not expected to live her ordeal with CDH, or to be able to get through school reasonably. She has proved in many ways she is a fighter!
    It has been 4 long years in college, and her trying to hold an awareness event for CDH. Her moment has finally come. With a lot of hard work and determination, she will be doing a test run of an awareness to CDH tomorrow ...
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  2. 7 Grueling Years

    Hi, I'll go ahead and welcome myself back here. I'm Tasha. I'm a 32 year old who has spent the last 3.5 years doing the dirty mental health self-care that no person wants to face. I am divorced now and co-parent a 12 year old son, Dante. I know that I am very privileged to be his mother. I wish I could lie and say I have strong memories of anything I've said or done relating to my life-changing experience with CDH, but I cannot. I am forever grateful for the Welcome Packet I was sent when I was ...
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  3. My cherub story

    Hello,
    I am 28years old. My CDH Survivor will be 8 on August 2nd. My story started at 19 years old pregnant with my first child. A few months later i turned 20. When I was 30 weeks pregnant i went in to have a 3D/4D ultrasound and immediately i noticed something wasnít right. The tech would not speak and she kept going over the same spot. Though at the time i had no medical background i knew something was wrong. Next thing i knew i was having a dr appointment and it was confirmed my son ...
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  4. My Cherub, my Hero

    Happy CDH Cherub Day to my special hero and all cherubs!💖
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  5. My Sweet Angel Baby Boy

    by , 06-13-2019 at 06:58 PM (My Little CDH Angels Story)
    This will be the very first post I do here. My son was born with sever RCDH. He was born with hardly any lung tissue. He was placed on ECMO for two weeks. It was the most horrible thing that i had to see my only child go through right after birth. He had his repair surgery while one ECMO and every thing came out good. During his stay at the hospital he was having his good days and extremely bad days. Every day it would be a different thing. Unfortunately do to his sever RCDH he developed Pulmonary
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