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  1. She's here!

    [color=black:6640bf06ab][/color:6640bf06ab]

    Lily Elaine was born on December 15th at 10:48 am.

    She is beautiful! She had a wonderful week, so much in fact that they did the surgery today (well, yesterday now)!!
    She had been on the lowest settings on her ventilator and medicines and was so stable that they decided to go ahead with it.

    We couldn't be happier with all of the nurses and doctors at CHOP. They are a blessing.

    At the ...
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  2. A Gift So Small

    As I stumbled to the Christmas tree this morning to turn it on, I couldn't help but notice a potato under the tree. I had to step back and chuckle. I knew exactly where it came from - Adam. I forgot that potato was there, but I do recall watching him putting it there. Earlier this week, I was busy wrapping and putting presents under the tree. Adam took off towards the kitchen and came running in with a potato. He dashed over to the tree and placed his potato underneath. Oh the sweet innocence ...
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  3. Pregnancy Update

    Another quick doctor's appointment today. I saw the midwife instead of the doctor and she predicted that it was a boy based on the heart beat... Hmmmm maybe she should have looked at my chart b/c she is definitely a girl :) The last ultrasound left no question as to that. The one thing I don't like about the midwife is she never looks at the chart before seeing me, so she has NO IDEA who I am or my history. Its very frustrating to have to explain everything to her again as if it were my first appointment. ...
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  4. How CDH came into my life

    My name is Jennifer and I became a CHERUBS member I think it was 2005/2006. My son was diagnosed with CDH when is was 7 months old while on vacation in Southern California. After misdiagnosis as Bronchialitis (sp?) and after almost a week and half of treating him for that, he was finally diagnosed after a second Xray was taken as a CDH. There was nothing in his abdomen. His left lung had collapsed and was filled with intestine. It was a blessing that when he was born his heart was on the right ...
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  5. Holidays

    Well I am so happy the holidays are here. I think that this will take my mind off of everything and then when the holidays are over I will only have two months left. So holidays bring on the fun and take away the worry. Well I hope everyone has a great Christmas and a New Year.
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