Stay Connected

View RSS Feed

All Blog Entries

  1. Gavins here!!!!!!

    Well I haven't been on in a few weeks, but I'm proud to announce that baby Gavin was born 6/11/2013 @ 9:57 pm!!!!!!!! ♥♥♥♥♥♥♥ he's been in the NICU ever since, they did the repair surgery on friday afternoon. He still has a patch on his stomach because his bowels couldn't entirely fit in his abdominal cavity... he has been stabilized and on meds to help with his blood pressure, and today he just got on Nit 0 for his pulmonary hypertension. They said ...
  2. New to this!

    It was my second time to be a mom.....just didn't know it would be to an Angel!! I had my first son when was 21. Novmber 1,2011. That was the best day of my life!!! then when he was 6 months I found out that he was going to be a brother!! December 19,2012 was my appointment! doctor told me don't go home your going to have your baby soon!!! and sure enough....December 20,2012 I gave birth to a 6Lb 12oz baby boy!! 3 hours later they came in to tell me he wasn't going to make it and I needed to make ...
  3. Journey of a Non-Traditional Pregnancy - originally published on

    June update:

    Well, when I said that I was going to write about how the birth defect congenital diaphragmatic hernia (CDH) was affecting our current pregnancy, I was planning to write about level 2 ultrasounds and additional stress. Wow, have things changed in one month.

    Our 16 week level 2 ultrasound for our son due in September was completely normal. The baby was the right size for 16 weeks gestation, the heart rate was great, and nothing looked out of place
    As ...

    Updated 06-10-2013 at 12:48 AM by NeilRubenstein (republished an old post)

  4. Journey of a Non-Traditional Pregnancy - originally published on

    May Update:

    I am going to take a break for the next couple of months with respect to my sonís story and how we dealt with finding out he had the birth defect congenital diaphragmatic hernia. This month I want to write about the Day of CDH Awareness which was April 19th. Next month, I plan to write about how CDH has affected our current pregnancy. We are expecting another boy in September.

    April 19th is the International Day of Congenital Diaphragmatic Hernia Awareness. ...
  5. Reherniation - Almost age 3 - Niklas

    Niklas had an annual check-up/x-ray early March 2013. Once again, they saw a grey area and requested MRI. They have been asking us to get an MRI for over a year. For many reasons we decided against it until now. A few days after MRI the doctor called and stated Niklas has reherniated. They met as a team and reviewed Niklas's x-rays and recent MRI. He has a small hole interally allowing a small part of his spleen and colon pop thru to his chest area (approx size of knuckle) the doctor's feel ...