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  1. New Blogs

    Hi everyone! I have moved this blog onto a different website which is just a bit easier for me to update everyone on. Please come take a look at:

    I have also started a blog for New England CHREUBS members. It's a work in progress right now, but check back soon for more stuff! You can find it at:
  2. 10 months

    So serious…. Cody really study’s everything around him.
    While playing, watching things around him, or listening to
    People around him talking.
    He does not get bored with his toys.
    He even watches baby’s first TV.
    When a show he likes come on he will clap his hands
    And watch it.
    We had to let one of our night nurses go yesterday. It was not working out and I was
    feeling overwhelmed when ever she was here.

  3. Way back when...

    CHERUBS is almost 14 yrs old. 14 years old. Wow! We have achieved so much over the years. Some parents remember what it was like to have a CDH child 14 yrs ago - there was NO SUPPORT. No information. No organizations. No internet. No library books that explained things. No help from any other organization for birth defects. No nothing. You were alone, without information, without support, trying to stay afloat in all the CDH lingo and stress.

    When my son was born the doctors gave ...
  4. Official Congenital Diaphragmatic Hernia Awareness Ribbon

    Why is the CDH Awareness Ribbon blue and pink and yellow with clouds you ask? Several years ago on our old listserv, members of CHERUBS (then the only CDH group on the internet) talked about having an awareness ribbon. We batted the idea back and forth and didn't go much further with it because it every color was already taken and it seemed a bit tacky to take a color that already belonged to other causes - we didn't want to take away from their hard work promoting their cause with their ribbon. ...
  5. No One Knows...

    No One Knows....
    by Dawn Williamson

    No one knows what it's like to be diagnosed with Congenital Diaphragmatic Hernia and have your world shatter - unless they have been there themselves.

    No one knows what it's like to watch your baby struggle to breathe - unless they have been there themselves.

    No one knows what it's like to cry yourself to sleep at night wondering if today was the last day you had with your child and the hospital could call at ...