Stay Connected

View RSS Feed

All Blog Entries

  1. Expecting a CDH baby in September



    Hello everyone, my name is Carly and we recently found out that our baby has CDH. We went in for our routine ultrasound, at 22 weeks.. We are expecting a baby girl, her name will be Jasmine Raine. We found out on 5-2-14, at my ultrasound they told my husband and I that she has left sided CDH, with only a herniated stomach at the moment. They wanted me to decide if we wanted to terminate the pregnancy, I said No, what kind of person would I be not to give my baby a chance at ...
    Categories
    Uncategorized
  2. A month and a day

    It's been a month and a day since her birth and death day. I feel like I just keep reliving that day over & over again. I find myself day dreaming about it all the time. I have those regrets of what I shoulda/coulda done but I can't beat myself up over it. I feel like it is hard to talk to my friends and family because they are tired of hearing about it. Ooorrrr... like in the case of my nana (grandma), she says that I'm putting on a front and I'll break down later. I honestly don't feel like ...
    Categories
    Uncategorized
  3. New to site

    Hello. My name is Alexandra and I was born with CDH when I was just hours old. I was given a 5%chance of living and spent three months of my life in the hospital. I am 21 almost 22 and I want to meet people mu age with CDH. Please message me thanks.
    Categories
    Uncategorized
  4. Riley's Story

    When I was 18 weeks I found out Riley had CDH. From then on out I doctored in Rochester. He was born October 29th, 2013 at 11:04am. He weighted 7lbs 12oz and was 20in long. They immediately had to put a breathing tube in and rush him to the NICU I barely even got to see him. When I visited later that night he was on a machine called the Ocillator. In the middle of the night I got a phone call...they needed to put him on ECMO because his lungs and heart weren't strong enough. On Novemeber 12 he was ...
    Categories
    Uncategorized
  5. Cherub Ava

    We are getting ready to go pick up our daughter from the hospital this evening. She has been there with right sided CDH and it's challenges for 7 weeks. We knew how blessed we were her first week of life when she seemed to have come out strong and was able to have the repair surgery later on that same week and did well through all of it. She was even eating well for awhile, but a repeat barium swallow showed that a lot of the feed was getting into her lung and it was decided that a g-tube which ...
    Categories
    Uncategorized