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  1. Bad News?

    I went yesterday for my weekly appointment with the perinatal specialist. Delaney is still doing great and passing all her tests. She is practicing breathing regularly and has good movement and heartbeat even through the contractions I have been having. Her weight isn't really where I wish it was but 4 lbs. at this point is nothing to scoff at. I had several contractions during the testing. They have been getting more frequent and more noticeable as time has progressed. They were coming at regular ...
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  2. April 19th in the UK

    Hi all , as many members know I am doing a Skydive on April 19th for Cherubs and will be blowing lots of kisses at 10,000 feet x I was just wondering what everyone else had planned to Light up the night in the UK. Once I have landed safely I'm off to join lots of other people & CDH survivor Josh Kenyon for lantern & balloon release . I hope to see lots of picture on the UK Cherubs fb page .
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  3. CDH survivors in Ireland

    We would love to hear from any CDH families with teenagers. Our daughter Caoimhe a CDH survivor is almost 15:
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  4. Feisty

    I'm sleepy today so this might be a bit more rambling than usual....which is saying something I had my weekly appointment with the perinatalogist yesterday. Delaney seems to be doing very well. She has gotten a 10/10 on her last two appointments there. She will do a growth check at this doctor next week, but I also saw my OB this week and she did a growth check and said that Delaney was 3lbs. 13oz. Which is one ounce over the "norm" according to the growth charts they showed me! I have ...
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  5. Its been a month...

    Its been a month since I was last on here. I have had so much on my mind and so much going on that I haven't really been able to put much into words really. Delaney has been doing well at her check ups and has passed all of her little exams. She is practicing her breathing even. She also has grown. She put on 1lb 1oz in three weeks, which the doctor said she wouldn't do that much. She is also still active and moves almost constantly. I, however, have been feeling more panicky and worried that she ...
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