Stay Connected

View RSS Feed

All Blog Entries

  1. Our little hero

    Our baby Kyle was born on February the 6th 2013, after he wa born we found out he had CDH he was rushed to Children's in Birmingham, Al. He was stabilized quickly an went on ECMO the night before last. We have been praying the whole way through and he is doing great. Hoping to get home as quick as possible
    Categories
    Uncategorized
  2. Respiratory infections

    Hello everyone,
    I just had a few question. Alyx has been getting respiratory infections quite often, I feel like this is because her left lung is not fully developed. Do any of you have this problem? Should I have her see a lung specialist?
    Categories
    Uncategorized
  3. Pennsylvania

    Hi everyone! I was just wondering about how to do a walk closer to where I live in Northern pennsylvania closer to Pittsburgh than Philly. Now I know there's a walk on April 19th in Philly but how can I possibly be able to do one in Erie, Pa?
    Categories
    Uncategorized
  4. Jagger

    Jagger is doing great he has not had one set back since I took him home 10 months ago. He hasn't had a cold the flu or anything (crossing my fingers). I have been super lucky that he is a healty little boy. He is going to be turning 1 in 23 days. I keep thinking where did that time go? He has been walking for about a month now he really really wants to run but hasnt figured that out yet ( I give is a week). He says a few words like Mama and Dada, Nana and Papa. He is just AMAZING and I am so proud ...
    Categories
    Uncategorized
  5. Re Repair

    My little girl is 19 months old and we found out yesterday that the surgeon will have ot go in and take out the initial repair (done at 1 day old) as her body is rejecting it. Seems like it wouldve happened sooner however its not the case. They will be tearing the old repair out nad replacing it with muscle taken from her shoulder......anyone else have this happen?
    Categories
    Uncategorized