Yesterday I meet with the neonatologist and he told me my baby has a zero percent chance of survival after she is born. Because she has two diagnosis that work against each other. I am trying to find at least one person who has had a baby with both. So far I have been unable to find any research or anyone who knows about both conditions. the doctors are really pressuring me to make a decision now before baby is born so we can have a plan. But I want to fight but part of me feels like I should enjoy the small time we have with her and not put her through all the pain and suffering that may eventually end her life to. I am so torn because I love my baby so much but I don't know if I can make her suffer seeing all the facts in front of me. Please somebody give me some advice. I have less then 7 weeks to go and I have no clue which way I should decide.

I recently had my first echo on baby at 25 weeks. The doctors are telling me that they think she has only one side to her heart. And that her survival rates are much lower when she is born. I don't know if there is someone who has had a baby with cdh and a very serious heart defect survive. My daughter has a left side hernia with her intestines, stomach and part of her liver in her chest. I will have another echo done at 28 weeks. Can someone please give me some hope. I pray that maybe because her heart is pushed so far to the right that they just cant see both sides. Please if you or anyone has any info or has been thru this. Please let me know your experiences.