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Wow, I haven't been on here in a while.

Lily has done so well that the doctors and nurses are calling her their "little super star"!
It looks like she'll be coming home in a week or two! We couldn't be happier.

Lily has a caringbridge website. Here is the link if anyone would like to read that blog. It has been updated much more then this one and has more information about her progress.
Thanks everyone for the prayers!! They have worked!!

www.caringbridge.org/visit/lilyquinn

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Lily Elaine was born on December 15th at 10:48 am.

She is beautiful! She had a wonderful week, so much in fact that they did the surgery today (well, yesterday now)!!
She had been on the lowest settings on her ventilator and medicines and was so stable that they decided to go ahead with it.

We couldn't be happier with all of the nurses and doctors at CHOP. They are a blessing.

At the moment, she is stable and doing great.

It has been the longest week of my life, by far. I just hope and pray that she continues doing so well. We know that it could change at any moment, but we really feel like God is with her and is taking care of her.

I'm so happy I can hardly sleep! :D

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Well, today we went to doctor for a regular check-up and to find out if my cervix would be favorable for me to be induced within the next two weeks.
To our surprise, I am 2 cm dilated and 100% effaced. So, as you all know, she could come anytime. I feel SO unprepared! My hubby is here at the moment. He didn't have plans to actually stay put here until the 18th. So, we're trying to figure everything out with work and how to get our car up here.

I'll be 36 weeks tomorrow. So even though she is a good size(she's measuring at about 6 lbs), they would still like to see her stay put for another week.

I've been having contractions off and on for the past two weeks. They are becoming closer together and I'm starting to get a little scared. I really want her to make it at least another week.

I'm trying to get everything ready. Is there anything I should make sure I pack that I wouldn't normally?
With Katie it was pretty simple. I just don't know what I need this time. It's all so different.

Well...I'm scared. I want to meet her so badly, but I want her to have a real fighting chance. I don't want her to come too early.

Just sitting here....trying to keep the faith.

:love3:

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Today, Justin and I have been married for 4 years! It feels like it was just yesterday. Then again, on some days it feels like it has been 10 years since we tied the knot. So much has happened in these short 4 years.

Anyhow, he flys up tonight. So atleast I'll be able to give him a kiss before the day is over. He lands around 10pm. It's been hard being away from him so much. Yet, I think it's making our marriage stronger. I think if we can get through all of this, we can get through anything.

Lily-
Well, she is doing GREAT! So far it looks like she'll be here around the 21st of Decemeber. (Which is a great day for us. We were engaged on March 21st, married on November 21st, and had Katie on January 21st. It's our lucky number!) The doctors think that might be the best day. So we're keeping our fingers crossed that it is.

We've started our twice a week appointments already. It's hard since it's about an hour away. Yet, it's making the weeks go by faster which is nice.

So HAPPY it's Thanksgiving tomorrow! I love the holidays...and then the count down to Lily's arrival begins! :D

I'm so ready to finally met her!

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We're now in Philly and trying to get settled into my inlaws home, which will be our home for the next couple of months.
It's a good thing I like my inlaws-huh?

Anyhow, my husband will be traveling back and forth b/c of work. We are VERY thankful that his company is so understanding and allowing him to take off so much. He'll be up every Thursday night and head back every Sunday night. Our appointments will be every Friday up until birth. So he'll be able to go to those. I think I go twice a week after 34 weeks, so he'll miss one. I'm just thankful he'll get to stay involved.

We had our first (of many) appointments this past Friday. It went SO well. My amnio fluid is down. My cervix hasn't changed any. So I'm not as high of a risk for premature labor anymore. I'm just so happy everything is falling into place. I just hoppe this baby keeps cooking until 38 weeks!

With all of that out of the way....

I'm going to have to try and find a way to stay warm up here! Boy is it COLD! I'm use to mild (very mild) winters. I don't know if I'll be able to get use to this! Then again, I might get to see my first white chirstmas!

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We got the news we've been waiting for yesterday afternoon. Lily doesn't have any other genetic disorders! We are over the moon! We now feel like she truly has a chance and we're so excitied to get up to Philadelphia and get things in order for her birth! We leave Thursday morning and we have our first appointment at CHOP on Friday. I'll be 32 weeks.

I'm scared and anxious to get the ball rolling. I'm so ready to meet my little peanut and yet so scared that something could go wrong. I want to keep her inside my belly forever to know that she is safe. Yet, I feel like she's going to be a fighter and I'm ready for the long journey that lies ahead.

I'm so happy this is the path God has lead us down. I'm just so happy to have....hope.

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Even though it's only been about a month, it feels like forever since we found out Lily has CDH. I'm thankful for all the information we've received. I feel much better knowing what to expect, well atleast knowing the different outcomes.

However, there is one hurdle we have yet to jump. We're waiting on our amnio test results. They said we should know by Wednesday. All of our plans are up in the air until then. The waiting game....sucks.

I'm ready to know what path the Lord has choosen for our little girl and our family. I see us going up north to PA and giving birth and Lily being treated at CHOP. Then I have moments of weakness, if that's what you want to call them. Where I see us here, waiting to let her go. I don't know how I'm going to make it through that if that is God's plan. How do you let go of a baby who is moving and living inside of you?

I try to keep my thoughts positive. I know we have so many people praying for us. They are very much appreciated.

I'm just ready to know.

I'm scared to know.

So here I wait...