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		<title>CDH Clubhouse - Congenital Diaphragmatic Hernia Support Group hosted by CDH International - Blogs - StephanieEgli</title>
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		<description><![CDATA[CDH International - The World's Oldest, Largest and Leading  Congenital Diaphragmatic Hernia Charity.  Supporting CDH Research, Awareness and Patient Families Since 1995 in 84 Countries.]]></description>
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			<title>CDH Clubhouse - Congenital Diaphragmatic Hernia Support Group hosted by CDH International - Blogs - StephanieEgli</title>
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			<title>Reherniation - Almost age 3 - Niklas</title>
			<link>https://cdhboards.org/entry.php?806-Reherniation-Almost-age-3-Niklas</link>
			<pubDate>Tue, 07 May 2013 22:23:06 GMT</pubDate>
			<description>Niklas had an annual check-up/x-ray early March 2013.  Once again, they saw a grey area and requested MRI.  They have been asking us to get an MRI...</description>
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<blockquote class="blogcontent restore">Niklas had an annual check-up/x-ray early March 2013.  Once again, they saw a grey area and requested MRI.  They have been asking us to get an MRI for over a year.  For many reasons we decided against it until now.  A few days after MRI the doctor called and stated Niklas has reherniated. They met as a team and reviewed Niklas's x-rays and recent MRI. He has a small hole interally allowing a small part of his spleen and colon pop thru to his chest area (approx size of knuckle) the doctor's feel it is best to wait and let him grow and gain weight. <br />
<br />
Any advice or opinion on this?  Should we let it wait?  I'm nervous about an emergency situation and/or bowel obstruction.  Hes fine and has been all this time so part of me agrees with the doctor(s) - UCSF.  However, the other part of me (his mom) is scared.  He will eventually need surgery. May be in a year, maybe 3 years. What we need to pray for is: complete healing (God pushes those organs down and closes the hole himself, if not protection that Niklas doesn't have symptoms where an emergency surgery is needed (bowel obstruction). <br />
 <br />
Any thoughts, prayers of course!<br />
<br />
Niklas wes born 7/7/2010 left side CDH.  Laproscopic repair NO PATCH!  Oxygen for 9 days.  Hospital total 26 days and NO repiratory issues or major issues since.  Pneumonia at age 9 months and minor acid reflux.  He currently weighs about 27 pounds and will be 3 on July 7, 2013!<br />
<br />
Thanks &amp; God Bless,<br />
Stephanie &amp; Family</blockquote>


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