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		<title>CDH Clubhouse - Congenital Diaphragmatic Hernia Support Group hosted by CDH International - Blogs - JoleneEdgar</title>
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		<description><![CDATA[CDH International - The World's Oldest, Largest and Leading  Congenital Diaphragmatic Hernia Charity.  Supporting CDH Research, Awareness and Patient Families Since 1995 in 84 Countries.]]></description>
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			<title>CDH Clubhouse - Congenital Diaphragmatic Hernia Support Group hosted by CDH International - Blogs - JoleneEdgar</title>
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			<title>Frusterated...</title>
			<link>https://cdhboards.org/entry.php?64-Frusterated</link>
			<pubDate>Mon, 15 Oct 2007 20:16:06 GMT</pubDate>
			<description>Well, I did not get the answers I am needing! S had her appt. w/ the ped. surgeon today and I was hoping for some answers but I got none. I know...</description>
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<blockquote class="blogcontent restore">Well, I did not get the answers I am needing! S had her appt. w/ the ped. surgeon today and I was hoping for some answers but I got none. I know something is going on w/ her but I can not get anyone to listen. I am sooo frusterated I could scream. We have drs. in two states and I think that is the problem @ times but financially we can not have all the drs in one place unless we lose out ped. surgeon from birth and I am not as happy w/ our drs in our home state as I am w/ the ones were she was born. She is following her own growth curve so we have no reason for a g-tube @ this point which is reassuring. <br />
Just what else is going on no one wants to address. Anyone w/ any suggestions? <br />
For now we will keep on keeping on until we find someone to listen. <br />
<br />
hugz!!</blockquote>


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			<dc:creator>JoleneEdgar</dc:creator>
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			<title>Our 1st blog entry...</title>
			<link>https://cdhboards.org/entry.php?62-Our-1st-blog-entry</link>
			<pubDate>Sat, 13 Oct 2007 02:58:21 GMT</pubDate>
			<description>Well, after much frusteration I got a few pictures up. Wow was I getting extremely frusterated.  
It has been a long week w/ all the days off the...</description>
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<blockquote class="blogcontent restore">Well, after much frusteration I got a few pictures up. Wow was I getting extremely frusterated. <br />
It has been a long week w/ all the days off the kids have had &amp;amp; they are getting cabin fever. I hope this is NOT a sign of the winter we are about to have. <br />
Hoping for a restful week-end before our trip to the ped. surgeon on Monday. <br />
<br />
Off 2 sleep!! :)</blockquote>


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