Well it's been months since I've logged in here, frankly with coaching my daughters cheer squad and being on the board I just kept too busy. During all the craziness Kate was told she would need another surgery. Since the surgery in May she had difficulty getting food down and staying down, she found comfort in eating the gelatin fruit snacks and would eat multiple packs per day. Well unfortunately she wasn't digesting them well and ended up with a wad of undigested gelatin in her stomach. This created much pain and suffering for Kate and after extensive studies her surgeon stating it was a bezoar, it needed removed and in his 20 years as a surgeon he had only heard of and seen one of these. (of course another rare item and of course it was Kate , she always has the rare stuff) long story short they were able to break the mass down without surgery, which was a miracle. We couldn't be more blessed since the surgery would have been by far the most difficult to date. The amount of stress we continue to endure from living with CDH is unimagiable to most and yet we move on and survive. Now back to our everyday mild decisions like should we allow Kate to try out for the basketball team?

Originally Posted by Therese Botell

Looks like Katelynn will have to have her hiatel hernia repair and Nissen redone soon. Hoping for a great outcome. The constant reflux, pain,and nausea is just about unbearable for her.

I new to this site but am thankful to have found it. My daughter was born 08/08/00 but I am just now seeing all the wonderful information and forums available here. I wish I had known of this place when she was younger and we were dealing with her feeding tube, various surgeries or during her cancer scare when she was found with tumors on her kidney. I felt so alone going thru the various steps and issues and wanted to find one person that could relate and maybe share their thoughts, experiences and opinions. I decided maybe I should write a book on all of our issues with the multiple notebooks and information I have kept and then I found this site. LOL
So for now maybe I will just do some small blogs and go from there.