Stay strong.
Hang in there.
Never lose faith.
Never stop beliving for a better tomorrow.
Smile.
Never mourn.
Never show your weakness.
For you are strong.
Love again.
Free yourself.
For you are a child of God.

Ricky's anatomy doesnt allow for a GJ feeding tube. So he just has a G tube, but it isnt working to well. He has horrible horrible reflux. And along with that he keeps spitting up, but Ricky is a strong little boy. nd continues to smile. i noticed he's very alert, and always looking at his fishy mobile. WELL the surprise is that he has MRSA, so everytime we walk into his room we have to wear a gown and gloves. It sucks alot. BUt i know everything will be oay. Just being tested by the big man upstairs. i'll never give up on faith. My son is different, and it's okay to be different.

Well so far, my son has some break down of the skin and some blisters around his trach because of the spit ups he has that slides to the neck. My poor little man, he seems to cringe when looking at the site, also seems to cry or get fussy when doing trach care. :( How i wish i can switch places, but i think all mothers would. How can such a small little innocent baby be put through so much?I alwqays seem to ask myself these types of questions. But my son is here another day, close to his next surgery, after his GJ is placed we will move from the NICU down to the Pulmonary Floor where i hear my son will have a tv and his own bathroom not like he's gonna need it, but i swear when the door slides open the look on his face seems to read "GEt ME OUTTA HERE" and i just stand and watch him telling him we will get to go home soon. Another thing thats been on my mind is school, im going to be a junior this year and i dont know what to do. I know my son is going to need me 24/7 but taking care of him and going to school doesnt seem so ideal, no matter if i dont get to go back to school i will make sure that i finish high school one way or another! I am determinded, i know it will be difficult but with the help and strength i know i can do this. Well i guess i unwinded myself with this lonnnngg message i think thats what i needed, so later website ill be back later or maybe tomorrow who knows? because staying at the hospital anything can happe. only time can tell..



xoxox Jasmin.

So im new to this blog stuff. But my name is Jasmin i am 16 years old, and when my son was born me and my boyfriend found out he had CDH. We didnt know what thi meant or what it was! Didnt even know things like that even existed. But yeah my son went on to fight this difficult battle, at time it seemed as if he was going to lose, but my son is a fighter nd he didnt let CDH win. So far he will be 3 months tomorrow. on July 18th he will get hi GJ tube in, so thats what we're waiting on. With so much on learning how to do trach care, and everything it seems like we're getting closer to going home. (: