CDH Clubhouse - Congenital Diaphragmatic Hernia Support Group hosted by CDH International - Blogs - AlexisK https://cdhboards.org/blog.php?7577-AlexisK en Wed, 13 May 2026 05:03:21 GMT vBulletin 60 https://cdhboards.org/images/misc/rss.jpg CDH Clubhouse - Congenital Diaphragmatic Hernia Support Group hosted by CDH International - Blogs - AlexisK https://cdhboards.org/blog.php?7577-AlexisK 7 week old, RCDH, questions https://cdhboards.org/entry.php?869-7-week-old-RCDH-questions Sun, 18 May 2014 23:29:08 GMT
Quote Originally Posted by AlexisK View Post
This is my first time writing here & it has been such a busy 7 weeks that I haven't had time to share my story just yet but just to sum it up -- I found out at 19 weeks that I was having a baby boy & that he also had CDH. I delivered via c-section at 37 weeks. My son went on ECMO after about an hour after being born & stayed on ECMO for 11 days. He had his repair on day 11 as well. Besides the hernia, he hasn't had any other problems except for reflux. He is scheduled for his procedure to fix his reflux in 2 days. He does very well breast & bottle feeding. He is currently on the low flow oxygen & to be honest I would love to take him home off of the oxygen.

For those who took their babies home on oxygen, did You take Your baby off of the oxygen while at home? like for hours? Or does it have to be in at all times?

& my other question is; did any moms return to work after their baby was born w/ the CDH? I have another child & she's 4 & Ive been out of work since delivering but I need to be able to provide for both of them. Can they do well in daycares or is it not safe?
]]> AlexisK https://cdhboards.org/entry.php?869-7-week-old-RCDH-questions