On Wednesday this week past my husband and I met with the doctor about our unborn son. I went through an MRI so they could see him better. They told us only his intestines are present in the chest. They told us he has a heart deformity as well. He has no lungs except a small "nub" on his right side by the heart. They told me that the moment he is born since he has no lungs, he will die on my chest. They told us all this before we have even seen CHOP. God is with us and I know he will help CHOP tell us what our son needs but it is still hard to hear. Struggling to stay rational.. :,(

My name is Tiffany Brown. Currently I am 20 weeks along with my first child ever. A little boy Named Johan Lee Brown. He is so strong so far. At about 18 weeks he was diagnosed with the CDH. I cried for a week. But then I had an amnio done, today we had a fetal MRI and tomorrow a Fetal EKG. The amnio is coming back normal so far but I will have more information in the near future. I am praying for you all mothers fathers brothers sister and all families going through this as well. God is on our side. He wants what is best for us all and he won't give us anything we can't handle. I am an open book so if anyone needs to talk or someone to pray with please contact me at tiffanyschlecht@ymail.com or here.

God bless you all!!!
Much love
Tiffany Brown