ErinUrbanski

On September 8, 2015 we found out our son had CDH. On September 18, 2015 we found out the CDH was a result of Pallister-Killian syndrome. As we were heartbroken, we remained to have hope. MRI showed he had no left lung growth, stomach, intestines, and majority of his liver was up on the left side. We were given a 0-1% chance survival rate. At that moment, we had to decide what would be best for our baby to not struggle or live a horrible life, and that was to do comfort care when he was born. I gave birth to our baby boy on December 12, 2015 where he stayed with us for 37 minutes and passed away on December 13, 2015. I am looking for ways to be involved and honor my son in anyways possible!!