AmyMiles

After our first ultrasound at 20 weeks, we were told that the doctors were concerned about the placement of the heart and stomach. My world had been turned upside down during my hour drive home from work. I held it together, until my husband fell apart.
This is our first child together and we could not believe that we were recieving this news. The doctors told us not to look it up on the internet because it would sound worse than it actually was. It was fixable was all they told us. We began researching while waiting to get into the specialist a week and a half later.
When we arrived at the hospital in Grand Rapids, we had our ultrasound and they confirmed that she has a LCDH. Her heart is shifted to the right, along with her mediastinum, and her stomach and a large portion of her bowels are in her chest cavity. We had some residents come in and look at the ultrasound because GR only sees about 3-5 babies born with this a year.
We were very disappointed with our visit with the specialist, as we seemed to know more about CDH. They never told us the severity of her case, survival rate, or anything.
Unhappy with the visit we called our doctor and are now in the process of getting referred to U of M in Ann Arbor, MI. We have our first appointment tomorrow. We will keep you all posted!