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Baby Kanarra

Both hyplastic left heart syndrome and cdh

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Yesterday I meet with the neonatologist and he told me my baby has a zero percent chance of survival after she is born. Because she has two diagnosis that work against each other. I am trying to find at least one person who has had a baby with both. So far I have been unable to find any research or anyone who knows about both conditions. the doctors are really pressuring me to make a decision now before baby is born so we can have a plan. But I want to fight but part of me feels like I should enjoy the small time we have with her and not put her through all the pain and suffering that may eventually end her life to. I am so torn because I love my baby so much but I don't know if I can make her suffer seeing all the facts in front of me. Please somebody give me some advice. I have less then 7 weeks to go and I have no clue which way I should decide.
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  1. Morgan Nuchols's Avatar
    I was born with Severe CDH but with Left Lung Hypoplasia. Left lung was 1/4 in size out of 100%. and 0 left Diaphragm muscle. Until after few plastic mesh placements as I aged. Will be 23 tomorrow. Next year will be 10 years of last diaphragm hole repair.