Stay Connected

View RSS Feed

AmyMiles

U of M visit #2

Rate this Entry
Another visit on Thursday Dec 6th. Went in for an MRI, Echo, OB visit, and U/S. They sure lied when they said that the MRI makes beeping noises, more like alarms or fog horns. She was going crazy in there, it must have been too noisy. They said she was doing Vogue poses and that they got really good pictures.

Next went to a high risk OB appointment, nothing new at all there. More or less to meet the doctors that may deliver me.

Echo was next. It went really well. They were concerned about the size of the left side. They believe everything looks good, it is smaller but still in functioning range. They will do another Echo after birth to check the aorta for narrowing.

Lunch and then a speedy ultrasound. We were supposed to meet with the other surgeon, Dr. Nugen (spelling). But our first doc we met with came in Dr. Mychaliska. We were suprised and now preparing for different news.

The MRI and US numbers for LHR didn't match up as they generally do. US numbers gave us a LHR of 1.44 the first time and 1.57 now. The MRI gave us 1.0 and calculated the lung volume at 10 cc :( I was freaking out in my head! Thinking oh my, my baby is in BIG trouble now! He said that because of the difference in numbers her case is now more severe. But that it probably falls somewhere between the two LHR readings.

Also more of the liver is up in the chest than originally thought. NOt a good thing. There is a good amount of liver up. Ugh... So more squishing of the lungs.

This all increases her chances for ECMO and the time spent in the hospital. They are doing a blind clinical study on a fluid called perfluberon that they can place in the lungs and apply constant pressure to encourage lung growth. We are eligible if she goes on ECMO, though we may never know if she was given the liquid.

Still processing all the info. Not sure what to make of it. Mentally exhausted already and the fight is just beginning.

I will go in 2 weeks before I am due to live in Ann Arbor, just incase. She is weighing a little on the small side. 2 lbs 2oz at 27 weeks. So we are hoping that she gains some weight soon.

If I can think of anything else I will let you know.

Amy
Tags: None Add / Edit Tags
Categories
Uncategorized

Comments

  1. JessQuinn's Avatar
    [color=black:6714c8f4be][/color:6714c8f4be]

    Amy-

    I wanted to let you know that you are NOT alone. I'm sure you were happy to find this place just as I was.

    I wanted to let you know that reading your blog gave me a little deja-vu. It sounded SO much like my story.

    I'm further along then you. I'm actually due Jan 6th. However, it looks like she could come any day now. I just wanted to let you know that I'll be thinking of you and little Faith. If you need someone to talk to, please don't hestate to contact me.
    I know what it's like to be away from home. I'm several states away. I also can relate to exactly what you are feeling and thinking.

    I wish you and your family the very best. I'll be praying for you and little Faith.

    By the way I love that name!!

    Hugs to you!