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TaraEdwards

It has been way to long!!!

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Wow! So much has happend since I was last on here. I had to return to work in February, which wasn't an easy decision but one that was for the best as the time. Scott resigned from work so he could stay home with Josie. Another decision that wasn't easy to make. Somehow we managed and made it through an ever changing year. We're praying 2009 is our year.

I am not able to accuratly bring you up to date without my journal or calender in front of me so I will just touch on how Josie is doing today.

She is going to be 15 months old Dec. 13th. Josie is walking, talking, eating, causing trouble, breaking hearts, laughing, playing, following her big brother everywhere, you name it, she's doing it! We no longer have OT/PT at home, no more visits to the doctors except for her routine check ups & shots, no follow up with surgery or special care clinics. It's wonderful, such a relief.

We recently were asked by our Peditrician to see a Nutritionist as a precaution. The doctor was concerned with Josie's weight gain. Although she is eating everything a "normal" or "healthy" child her age eats, she is not gaining weight as consistant as the doctor would like. I blame her metabloism & very active lifestyle. Josie doesn't sit still for a minute durin the day. I always say that she's making up for the three months in the hospital. Anyway, we went to the Nutritionist who took Josie's weight, messurments & noted her eating habits/diet. She was not overly concerned & took it as a preventative visit. Everything we were doing is right. Josie eats a high calorie diet of whole milk, carnation instant breakfast, meats, veggies, fruits, etc. I don't understand why she's not gaining weight when I'm eating all the same foods and don't have a problem gaining!? So we were asked to keep up what we're doing, with a few tweeks and return just to get a weight. Our second visit, a little over a month later, Josie didn't gain so much as an ounce. I'm baffled. I thought for sure she had gained weight. We even bought her the next size up in diapers. Now the Nutritionist is concerned. We have a 15 month appointment coming up next week for shots. I was instructed to get a weight & if Josie has gained we don't have to continue to see the Nutrionist otherwise we have a follow up in Feb. 2009. That is where we are with Josie's health concerns nowadays.

I'll have a more thorough update next post. To go back, Josie, Scott & I got so fed up with the vomiting, acid reflux, the NG tube and oral adversions that we worked really hard with Josie. Nor were we very open to the idea of a "Micky button" or a hiatal hernia repair. We decided one weekend to simply take out the NG tube (continuous feeds) and focus on bottle feedings. Well, she took it like a champ! All the OT at home had paid off. After that there was no more throwing up, gagging or acid reflux. Especially no more feeding tube! It was a another prayer answered.
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