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JenniferTenney

How to help

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I am having a tough time today with deciding when to comment and what to say on certain cdh blogs I stalk. First, I don't have a blog (except this one) ... I so wish I did one, I would have loved to have support and advice ... but I know everyone is an individual and sometimes maybe people just don't want to hear it. I definitely don't know everything and haven't experienced everything so I don't know, sometimes I think I comment where it is none of my business. I don't want to come off like a know it all. On the other hand, I am blessed to have a survivor and I do want to give people hope. The most important thing that I did that got me through the process was read all the survivor blogs I could find. I did not read any angel blogs, just survivors. They were my security blanket and I would pull them out during my hospital stay and read them like an old, comforting book. I always comment with the best of intentions ... not to make myself feel important, but to try to give others hope. Every now and then, though, I think I go too far. Especially in my promotion of Dr. Kays and Shands. I do think they are the best. But I know other people who went other places think that those places are the best. I do know that there are a handful of expert CDH hospitals (at most 1-2 per state) and I know that those are the places you want to be. I would love to encourage more people to go to Shands or one of those cdh centers because I truly believe they are the best ... but on the other hand, I don't want to make moms who didn't go to one of those feel bad or that they made a mistake. So it is tough to make recommendations to new parents without making angel parents second guess. I would never, never, never want even one person to feel bad because of what I wrote. So it is a dilemma ... I guess I will keep commenting because I have to assume that sometimes it is helpful ... since it was so helpful to me.
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