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TLCSHANNON

going home

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I cannot believe it, were are going home tomorrow day 16!!! we did finally hit a few road bumps, FEEDING, what a pain, he is supposed to take so many cc's by mouth and whatever he doesnt take by mouth goes in his feeding tube. well, he has been tolerating his goal amount but hasnt been taking it all by mouth. Last night I had the nurse do two of his feedings so i could get some sleep and something didnt seem right, she said the 12 feeding he spit up 20 cc's which he never did before and she had to stop, then at 3:10 I woke up to him crying and she was supposed to feed him at 3:00, I noticed all his milk was in the pump and I asked her again what happened and she said he only took 20 by mouth and so the rest went into the pump, I think she just didnt want to feed him, because at 6am I fed him and he took 71 cc's and left 4 cc's to go into the tube which is nothing. and then just an hour ago I fed him and he took all 77cc's by mouth and he has never thrown up for me. The Nicu nurses were the best I have seen, but as we move up floors the quality goes down, which is too bad, but that is why I am here, I noticed a few times that they were upset with me, I told the nurse who didnt feed him right that he is always hungry 30 minutes before his meal becuase she was coming in late and he would be screaming and there was nothing I could do but wait, so then I buzzed her nad said hes hungry at 10 minutes past and then it took her another 20 minutes to get set up, I was not impressed at all with her. Maybe she was just an CNA I dont know, but another aide came in and changed his diaper then tried to feed him with the same gloves and I told her, there is one nurse who is on top of things maybe she is the RN, but I just wanted to vent, we really have to watch out for our kids. His pulmonary hypertension has improved 50% since birth and hopefully keeps getting better, I dont know what it was at birth but they said not bad at all, whatever that means, there is so much to remember and learn. But, we are going home and that is all that matters.
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