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Heather Roach

Our Unborn Son Silas

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ID:	32ok to all my family & friends: Im going to try to explain what is going on as you may have figured out something is wrong with our unborn child! 1st let me say the good news: ITS A BOY!!!!! Silas Samuel Forsyth Roach . So our baby boy is fighting for his life! He has been diagnosed with Congenital Diaphragmatic Hernia (CDH). He also has missing radius bones in both his arms & possibly clubbed hands. He either has no stomach or a ruptured espogus, 1 kidney & a diviated anus as well as an underdeveloped cerebellum. None of these things are from anything we have done but just horrible flukes that may or may not come along with this condition. So Silas is fighting for his life & we are consumed with every waking moment trying to fight for him too. We need all the prayers we can get as there are power in numbers!
UPDATE:
My husband & I have been going to Winnie Palmer Hospital for further testing and results on our son. I have also been transfered to the HIGH RISK CLINIC. We have had 2 tests on our Silas' Chromosomes & they have both come back normal. We are waiting on a test now called the MicroRay test which takes 2-3 wks so any day now the results should come in. Either it will give us answers or come back normal. If it comes back normal then Eli & I will both have blood drawn to test our DNA to look for a resessive gene that we both may have passed down to Silas'. If the tests come back normal then we will have to wait to see if Silas makes it to term & if he does so then he will be evaluated to see what syndrome he may have. The ones that they believe he may have are so rare that they are 1:200,000 babies are born with these syndromes. So as of now we still have no answers accetp that he DOES have CDH severly & possibly a very a rare syndrome. Every day Silas kicks harder and gives us all the signs that he isnt giving up so neither are we!!!
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