Heather Roach

So, Fri I had labs done... 9 tubes of blood later & an arm that looks like Im a junky cause on the last tube of blood my arm decided to stop pumping blood so the nurse tried to adjust it but had to pull it out & stab me again with the needle & even then my blood wasnt movin too quick! Now yesterday I went to Winnie Palmer Hosp for mt echo cardiogram. I got some sonogram pics which have already been added to my pregnancy album on here & they said the best news Ive heard since they diagnosed Silas.. HIS HEART IS STRONG & NORMAL & FUNCTIONS PROPERLY (although it IS on the right side of the chest due to the CDH). That came with a sweet sorrow though, the news that there is almost NO amniotic fluid in with Silas. Why is this bad? Well, CDH crushes the lungs so that they cant develope & the lungs grow from the baby taking in the fluid. With almost NO fluid I dont expect to get a good report from the MRI results for the lung developement!! We talked about ALL the options. We can inject saline into the amniotic sac to add fluid to whats there, but that is very dangerous for Silas. Then we talked about in womb fetal surgery to help him out to move the intestines to give his lungs room to grow before he is born, but he isnt eligible due to his other anomalies making it too risky, & then there is giving me steriods but apparently that doesnt get done till right before his due date Oct. 18, 2011. So ALL those options were NO accept the steroids.. BUT thats later on in pregnancy.. Then I went across the street to Arnold Palmer Hosp & hours after my SCHEDULED appt. I finally got in and let me tell you they put me on the sliding bed that geos into the MRI machine just like they would any of you BUT they palced a thing over my stomach that would take the pics of Silas. They then rolled us into the MRI machine & it began....... It was so surreal, loaying there the machine started to make this loud banging noise that it always does but thats when it hit me.... Silas absolutely HATED that noise and the thing on my stomach. Because there is barely any fluid in with him he can feel every touch. he was kickin this belt hard trying to get it away for sure whenever the loud noise would start he would kick harder & movelike crazy. He moved more & harder in this hours time than my whole pregancy!! He hated that noise & pressure on his home he wanted it all to stop. Thats when I could help but silently cry when I was tucked in that machine. I realized that my blessed son is VERY sick & although I never forget I always try to think as though it can & will all be fixed no big deal & everything will be ok. It came back to me though that just isnt the case & as much as he hated this I had to do this for him because being his mother I have to do everything I can to save his life. I also realized how helpless I felt though because reality is this: I have no answers, the doctors have no answers & without those its kinda a crap shoot for the best outcome & that wont start till he is here with us, but honestly guys that could very well be TO LATE!!.. Im his mother & Im supposed to be able to make everything better & fix all his boo-boo's well this time I cant. BUT then I thought that if he is fighting that hard over this MRI then I KNOW he is a fighter & that will get him through Jehovah willing... So that is where we are now.. Im building a website & a blog for family & friends to follow & to help the wonderful family we have made at CHERUBS (a non-profit org for babies born w/CDH) gain awareness & donations to help other families like us. So when that is done Ill post the link here so that each and everyone of you can help our family help other families by spreading the word about the website which will tell the story from Silas' point of view.. lol I thought no one wants to hear from boring old me, however a from Silas' point of view would be fun to write & interesting to read.. Till nxt time I have an update family & friends.. Nxt appt is Aug. 11! I should get the results from MRI scan & I should be getting a call from a NEW specialist DR that just joined Winnie Palmer Hosp. a month ago.. They asked my permission to review my file with this new Dr & I said YES to that, so they will be calling me to have a meeting scheduled with him & other Dr's & nurses that will be Silas' "Dream Team" so to speak!