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juliedobbs

Bryson Alexander Diagnosed

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We just found at 23 weeks that our little Bryson has LCDH. They initially thought that it was CCAM but now they are convinced that it is this. Fortunately, his structure of his lungs and organs looks good however, his bowel is in his chest pushing his heart. We did a amnio to rule out chromosome abnormality and the physicians seem optimistic that he doesn't have this because of our blood sequential screening tests as well as the u/s have looked great. His heart is structuraly perfect. We are praying that we get a good report on Tuesday when we go for another u/s. We don't really know what is in store with us. Just have to take it day by day. Not to mention how terrified we are. We have a 16 month old little boy Landon and he is as healthy as can be. I am trying to stay focused and not go crazy. But, waiting 31/2 months is going to drive me crazy. I wish I had a crystal ball.
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  1. JadeHunt's Avatar
    Dear Julie,
    My heart goes out to you during this scary time. Our son Liam was born with CDH, though we had no idea prior to his birth. He passed away just over a month after his birth due to an infection in his trachea from the ventilator tube. I know how terrified you are! We have a two year old son, Landon who is, just like your Landon, as healthy as you could imagine. Liam's condition was so unexpected, as he looked as perfect as his brother all the way through my pregnancy.

    Please know that, from a mother to a mother, I am here if you ever need to talk or vent. My thoughts and prayers are with you and your family!

    Take care and God Bless,
    Jade Hunt