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mandymorena

A day I thought I'd never see

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One year ago today After many hours of waiting and one good push AXAEL LYXANDER VEGA came into this world, without a sound and not moving, to turn my world upside down. At 5lbs. 10oz. and 9 inches long he had all odds against him. He was diagnosed with Right Congenital Diaphragmatic Hernia, Congenital Heart Disease, Persistent Pulmonary Hypertension of the Newborn, Low Muscle Tone and a great other things. After 4 months in the NICU, 5 surgeries (On ECMO, Hernia Repair, Off ECMO, Open Heart Surgery, G-Tube placement), countless iv's, pricks, probes, blood gases, electolyte checks, intubations, extubations, CPAP's, cannulas, medications, 20 different formula changes, and hours and hours and hours of crying, screaming, and asking why Axael GRADUATED from TEXAS CHILDREN'S HOSPITAL NICU LEVEL III (Purple Pod).
He's been home exactly 8 months. Even though we've had a few scares, including a bries battle with RSV, HE'S SURVIVED IT ALL.
It's been the roughest year of my life but I've survived. Becoming stronger and even meeting a lot of great people along the way.
God has given me the honor in being the mother of a child with many needs that need to be met day in and day out. And yet to they are miniscule in comparison to the enormous love I get in return from my amazing Axael.
HAPPY 1ST BIRTHDAY AXAEL!!!!!
MOMMY LOVES YOU MORE THAN WORDS CAN EVER SAY.
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  1. JadeHunt's Avatar
    Happy Birthday to Axael! God Bless you all! Many thoughts and prayers are always with you!
  2. Chris and TracyMeats's Avatar
    Happy Birthday to Axael! What a precious miracle! May you have a beautiful holiday season with your Axael. (((HUGS)))