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mandymorena

Practice, practice, practice

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Axel has had a gtube/mickey since right before he came home from the NICU. This April will be one year. As hard as I tried to get him to eat something by mouth he wasn't having it. He passed his swallow study back in the beginning of September, but only purees. He still failed thin and thick liquids miserably. So we started slowly giving him purees. But most of the time it ended in failure. We had started therapy with ECI but soon D/C it and asked for an appt at Texas Children's. The soonest opening is in March. I decided to really take this in to my hands and do my best to get him eating by mouth. I went out and bought about $40 worth of baby food. All flavors and colors. lol. Axel was going to eat by mouth whether he liked it or not. I'm glad to say my stubbornness paid off. When he sees that spoon (plastic no metal just like his daddy lol) coming to his mouth, he spits out his Binky and opens wide. When I am feeding him by tube he wants to eat by mouth at the same time. SO happy he is realizing that eating by mouth is good. He can take about 7 oz of pediasure while eating 2 to 3 oz of baby food by mouth. Some days he can eat 4 oz. Yesterday he ate guacamole, refried beans and chile con queso. A real little red-headed Mexican boy. lol Wishing he would gain weight. HE has so much energy. Hates taking naps, and is scooting all over the place. He had to install a door to keep him from going into the kitchen and the new rule is the restroom must always be closed. The waste basket is too much temptation in both places.
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  1. mandymorena's Avatar
    lol sent before i was finished lol. HOPE EVERYONE IS WELL ALWAYS PRAYING FOR ALL THE CHERUBS EVERYWHERE ((( <3 )))
  2. Chris and TracyMeats's Avatar
    Axel is such a precious child! Love hearing his updates. Hope his eating keeps on an upward trend and he gains some weight! He is at that age with all that energy, it is hard to keep the weight on. LOL on getting into things! Too cute!