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Our son damion and his life living with congenital diaphragmatic hernia!!!!!

Damion Story!!!

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On 11/29/11 i was getting induced at Centerpoint Hospital because i was already 10 days overdue with my first child. I went into the hospital at 4:30am to start the process and by 5:30pm i was fully dilated and was ready to start pushing, i try for 2 hours but he wasn't coming out not even with forecepts so they rush me to have a emergency c-section and i freak out telling something is wrong. Once he was out all i could remember was them giving me a glance and looking over at his father (eddie) and saying why isn't he crying, they said he needs some oxygen because he couldn't breath on his own, I was sent to a recovery room waiting for my son when a group of doctors came in and told me my son was born with a birth defect call Congenital Diaphragmatic Hernia and they needed to rush him to Childrens Mercy Hospital to recieve the care he needed or he was going to make it, I lost it thinking that i was never going to even get to hold my son. Our family was waiting and wondering why it was taking them along time but when they all heard the news they all was shocked and comfort me and finally calm me down! I got release 12/1/11 two days earlier then they wanted but i got a call saying they wanted to do surgery. When i got to the hospital before surgery i got to spend some time with him but it was hard not to cry they had him hooked up to alot of tubes and a ventilater, the surgery team came by and told me all of his Diagnosis: Congenital Diaphragmatic hernia, Congenital hypoplasia of lung, PPHN-pulmonary hypertension in newborn, Anemia, etc. During are waiting time they seen he wasn't stable for surgery and decided to wait acouple more days He was doing good so they took him 12/5/11 for surgery and he did great thru surgery and after surgery, he was starting to gradually come down on the ventilater and oxygen and was totally off the ventilater a couple of days after surgery and a couple of weeks later off of oxygen totally. They put a feeding tube in his nose to start him on formula and they seen that he had a lot if spit ups they figure out and diagnosis him with Gastro-esophageal reflux disease and was put on medicine for that, once he was holding it down we tryed the bottle but he never took much for after a couple of weeks he just was progressing so the surgery team came by and talk to us and explain he was only still there because he had feeding problems and if we wanted him home we needed to explore some options and one was to put the g-tube in and we didn't want to but knew that was what would bring our son home so they did surgery 1/23/12 and he did great and 1/27/12 our angel was coming home. Before we left that day all i could remember is how much the nurses love Damion and how sweet and good he was thru it all and i was even told that he could be the Poster Child for CDH!!! How Amazing is that!!!!
Our Angel came home and not a week later started taking the bottle like a normal baby. We had a home nurse for a month but they decided we didn't need her. We still go to several appt. special care clinic for his growth and he is progressing great and surgery clinic for his tube and CDH and 06/12/12 the g-tube will be remove. He is still on medicine for his reflux too. Damion is 5 months old and doing great but we still pray everyday for him to stay healthy and grow up to be a normal child!!!!
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Comments

  1. Chris and TracyMeats's Avatar
    Damion is a precious miracle...thank you for sharing your journey with us. I hope Damion keeps doing well, growing and thriving and stays healthy. What a strong little boy!
  2. Heidi Isbell's Avatar
    Thanks so much this website is so great i have had so many questions to why this has happen to me i never knew how lucky i was till i read other stories and no he wasn't the only baby suffering... he has been the happiest baby ever for going thru everything and never once gave up i am so glad ur son is doing good i could 't imagine what he went thru and still is but the sickest babies seem to be the strongest happiest babies i know!!!
  3. MariaFarnsworth's Avatar
    I truly love reading the miracles.

    Prayers for Damien for future victories.

    Thank you for sharing Damien's story.

    Blessings Always,

    Maria
    Nonna to Angel CHERUB Liam ("The Lion") Anthony Hunt