Lillian McMarlin

When I found out I was pregnant with my daughter Angela Faith I was shocked because after the birth of my son 2 years prior I had an iud inserted. My doctor performed an ultrasound right away to make sure she was ok and to check for the iud, which not visible and later determined to have fallen out. However, because of the iud scare I had many ultrasounds throughout my first trimester, throughout which Angela seemed to be fine. I continued to have ultrasounds, some biweekly, and eventually was told that I had too much amneotic fluid, 35 cm at 18 weeks. At one ultrasound the specialist said he could not see her stomach, or was unsure of what he saw?! He told me to come back in few weeks and check again. I didn't know what to think and since shd kicked and moved so much I tried not to worry and told myself she was fine. After more ultrasounds and the specialist still unsure of what he was looking at, he recommended an MRI, which we had done soon after at the Cleveland Clinic. The results from the MRI said she was fine, everything was where it should be, don't worry. It was only after Angela was born at 36 weeks that we were told she had CDH. We were more than devestaed, we were literally dumb founded, and the professionals around us seemed to be as well. I am finally able to do my own research on CDH even though it has only been 2 short months. I am amazed at how many people are diagnosed during pregnancy and at how many survivors and treatment options there are. I would like to know if anyone has had a similar experience to mine, I'm very confused by this!