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JasminCasassola

My Son is a CHERub.

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JasminCasassola
, 07-10-2013 at 01:13 PM (2165 Views)
So im new to this blog stuff. But my name is Jasmin i am 16 years old, and when my son was born me and my boyfriend found out he had CDH. We didnt know what thi meant or what it was! Didnt even know things like that even existed. But yeah my son went on to fight this difficult battle, at time it seemed as if he was going to lose, but my son is a fighter nd he didnt let CDH win. So far he will be 3 months tomorrow. on July 18th he will get hi GJ tube in, so thats what we're waiting on. With so much on learning how to do trach care, and everything it seems like we're getting closer to going home. (:
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  1. ClairMaher's Avatar
    Hi Jasmin, congratulations on the birth of your son & welcome to Cherubs xxxx becoming a member of Cherubs I found a huge help x lots of families also travelling the CDH journey x My Cherub is called Charley she is 3 years old and also has a g tube look forward to getting to know you and hearing all about your son x what is his name ? X
  2. Chris and TracyMeats's Avatar
    Hi Jasmin, congratulations on the birth of your son!! You have found a wonderful support group and we here for you....ask us anything. Never give hope and always have faith in your son, he sounds like a fighter. Not too many read the blog section of the forums, so if you post under the forum tab in one of the categories, you will get more members to see your post.

    (((HUGS)))....tell that sweet baby boy to keep fighting.
  3. JasminCasassola's Avatar
    Quote Originally Posted by ClairMaher
    Hi Jasmin, congratulations on the birth of your son & welcome to Cherubs xxxx becoming a member of Cherubs I found a huge help x lots of families also travelling the CDH journey x My Cherub is called Charley she is 3 years old and also has a g tube look forward to getting to know you and hearing all about your son x what is his name ? X

    Thanks, and yes i turned to this website because i didnt know how to cope with my son and his conditions. I wanted to join a website or a blog to share my sons story so now i am here. It feels as if i belong because we all have that one thing in common, our cdh babies! And as much you wanna know about me, i want to learn about you and Charley! (: My sons name is Ricky Leonardo Perez.
  4. JasminCasassola's Avatar
    Quote Originally Posted by Chris and TracyMeats
    Hi Jasmin, congratulations on the birth of your son!! You have found a wonderful support group and we here for you....ask us anything. Never give hope and always have faith in your son, he sounds like a fighter. Not too many read the blog section of the forums, so if you post under the forum tab in one of the categories, you will get more members to see your post.

    (((HUGS)))....tell that sweet baby boy to keep fighting.

    Well thank you, i dont know much yet but thanks for the advice! (: I want to share my story so that the whole world knows about CDH and if i can do that by sharing my story i will do so with a smile.
    Glad to feel welcomed to the CDH community. <3
  5. ClairMaher's Avatar
    Hi Jasmin, how are you all doing hun x How's little Ricky I'm here in Boston MA at the Cherubs conference but I am one of the Cherubs Reps from The United Kingdom x it will be great to get to know you more too and tell you all about Charley x x
  6. Chris and TracyMeats's Avatar
    Are you at a hospital in TX then? We do have a hospital angel at Texas Children's and we do have a TX State Rep. Her name is Casey Carter and she can be reached at texas@cherubs-cdh.org or ccarter@cherubs-cdh.org.

    Thinking and praying for Ricky's continued healing and recovery.