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JasminCasassola

Another Day At Childrens. (:

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Well so far, my son has some break down of the skin and some blisters around his trach because of the spit ups he has that slides to the neck. My poor little man, he seems to cringe when looking at the site, also seems to cry or get fussy when doing trach care. How i wish i can switch places, but i think all mothers would. How can such a small little innocent baby be put through so much?I alwqays seem to ask myself these types of questions. But my son is here another day, close to his next surgery, after his GJ is placed we will move from the NICU down to the Pulmonary Floor where i hear my son will have a tv and his own bathroom not like he's gonna need it, but i swear when the door slides open the look on his face seems to read "GEt ME OUTTA HERE" and i just stand and watch him telling him we will get to go home soon. Another thing thats been on my mind is school, im going to be a junior this year and i dont know what to do. I know my son is going to need me 24/7 but taking care of him and going to school doesnt seem so ideal, no matter if i dont get to go back to school i will make sure that i finish high school one way or another! I am determinded, i know it will be difficult but with the help and strength i know i can do this. Well i guess i unwinded myself with this lonnnngg message i think thats what i needed, so later website ill be back later or maybe tomorrow who knows? because staying at the hospital anything can happe. only time can tell..



xoxox Jasmin.
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Comments

  1. Chris and TracyMeats's Avatar
    (((HUGS)))...one day at a time and always focus on the positive. Ricky is here and still fighting! I am so sorry that he in having trouble with his trach. I imagine the hospital social workers have started talking with you and what happens when you bring him home. He will qualify for in home nursing care that will help you, you just have to interview and find a nursing company you feel comfortable with. The hospital social workers should be able to help direct you. They can also help you with anything you can think of, just ask.

    Ricky is blessed to have a mom who is still standing by his side and fighting with him, even through the darkest moments. One day at a time. We are always here for you if you need to talk or vent. (((HUGS)))
  2. AmandaPlakholm's Avatar
    Sounds like you have a strong boy. Stay strong and keep the attitude of finishing school whenever you are able too. Sending love and strength to all of you.
  3. freedom's Avatar
    I hope your little guys feels better soon.
  4. JasminCasassola's Avatar
    Thanks for all the advice and love and support. Feels amazing when we dont now each other, yet many people send us best wishes. I thank every sngle one of you. Maybe one day we will all meet and share our wonderful stories.