Stay Connected

View RSS Feed

CarlyD

Expecting a CDH baby in September

Rate this Entry


Hello everyone, my name is Carly and we recently found out that our baby has CDH. We went in for our routine ultrasound, at 22 weeks.. We are expecting a baby girl, her name will be Jasmine Raine. We found out on 5-2-14, at my ultrasound they told my husband and I that she has left sided CDH, with only a herniated stomach at the moment. They wanted me to decide if we wanted to terminate the pregnancy, I said No, what kind of person would I be not to give my baby a chance at life. *Not to offend anyone by that statement*
They set up a Cardiologist appt for us that was on 5-6-14. The cardiologist said that her heart looks perfect right now, no abnormalities at all. And the left valve * I don't know all the technical lingo* Going to her left lung is really good sized, and is almost the same size as the healthy right side. He told us that, that meant,that her lung is probably growing well right now.
I'm hoping that all of the things that i've learned about our little girl are good, and that it will mean her case isn't as severe as it could be. We are suppose to go for an ultrasound every two weeks. And we will have to go to Massachusetts for delivery, we live in maine and they don't have the things she will need when born.
But now I'm confused with who I'm suppose to be seeing and who i'm not. My doctors seem to not be communicating very well, So when we go in this thursday for my ultrasound i'm going to have to talk to someone and straighten it all out.
This has been an incredibly emotional couple of weeks, I think I've felt every emotion possible. I'm hoping that this group will help me understand things more as i find out more, and the support is exactly what I need! We are due between 9-4 and 9-11.. Everytime we go in Jasmine looks younger or older.. so we don't have an exact due date right now which is pretty frustrating!
Categories
Uncategorized

Comments

  1. FeleciaWoodruff's Avatar
    Hello Carly,
    Welcome to CHERUBS! I will keep Miss Jasmine in my prayers. Is there any specific questions that you have? Hope the appointment on Thursday you get some answers.