Tiffany Brown

Tiffany, I'm so sorry you're going through such a hard time. I remember how hard that diagnosis was for me to hear. My little boy was not as severe, but they did tell us they weren't sure how he would do. I can only imagine how you are feeling. Give your baby boy lots of loving. You, your family, and your son are in my prayers!

How did you deal with it? Is your baby here or is he in Heaven? I would like to connect to and have as much support and give as much support as I can before my baby has a chance to fight. He is so strong already at only 21-22 weeks. I have so much faith and the box the charity sent is amazing and sent me more hope. I hope they do the same for everyone.

This was our first baby so I tried to just enjoy being pregnant. I did my best to stay positive and educated and took one day at a time. I knew that my little boy was happy and safe as long as he was inside of me. There will be hard times though, the worry never completely goes away, but that's why you have support on here from all of us. My little boy, Sammy, is in heaven now, and while I miss him so much it hurts, I am thankful for the time I had with him. I think back to how active he was when I was pregnant, positions he liked to stay in, things like that. So no matter what the doctors say, cherish every moment you have with your little boy and tell him how much you love him and keep your faith in him! And please feel free to come here for whatever type of support you need. That's why we're here!

I'm so sorry. I'm sure he smiles down on you and waits for the day he meets you again. I will I love him so much already. I know if we keep faith and stay strong no matter what happens we will be okay like I know you are. I wish he could still be here for you too. I will keep you all in my prayers as well. Thank you for the support and I am here for you as well.

Thank you Tiffany. I know that my little boy is happier and healthy up in heaven, but it is hard not to have him here with me. That's why I'm so thankful for all the memories I have from my pregnancy and his short life. Every day gets a little easier.
When are you going to CHOP? I will be thinking of you hoping for better news from them and praying for strength for you.

Thank you. I am not sure yet, I have my intial phone call soon to even go up and meet them. I hope they can save him. I have severe depression from the military and him going away would hurt me worse. You are very strong to be doing so well.

How were you able to overcome and handle the loss? If you don't mind me asking. How do you get through the hard times now?

By no means is it easy. I still miss my baby Sammy every day, and some days are much harder than others. I still break down and cry, I still obsess over my pictures and his blankets, and I still feel empty without my baby in my arms. I'm not telling you this to scare you or make you sad I just want you to know that I'm a real person too.
My mom told me a story about my grandmother who lost a two year old girl when my mom was very young. One time one of her aunts asked her how she got over losing her daughter. My grandma replied, "I never did." But my grandmother was an amazing, happy woman for the 20 years I knew her. So I decided soon after I lost Sammy that even though I may never be ok with losing him, I need to keep living and finding ways to enjoy my life. I also reminded myself that Sammy would be sad to look down on his mommy and see her unable to move on. It's not easy, but I try every day to make Sammy proud and I try to find happiness.

Know also that I heavily rely on my support-a good grief therapist, an amazing family and husband, and a really awesome group of friends. these people are there whenever I need to cry, reminisce, vent, try to make sense of things, ... Whatever. I draw a lot of strength from them.

I wanted to be honest with you because I know that having a baby with a CDH diagnosis is never easy. Your son will be special to you no matter what, and he already knows how much you love him. I'm sorry that you have to go through this, but so glad you're here so you can be supported by so many others that have walked this road before you. Please post on the forum too--I think more people see those posts and you can get even more support. I'm thinking of you Tiffany, and praying for you and your baby. Take one day at a time and, even though you're worried, love that little boy of yours!! Please keep me updated!

You are such a strong woman. I want to be like you if my son takes a turn after they try to help him. I will try posting in the other side when I get more information. I already love him so much I cannot wait until I meet him if only for a moment. Thank you for the courage and the motivation to keep strong. You are doing wonderful!! I will keep you posted as I know more as well. Thank you for your story too I know how that is opening up about something so near and dear to your heart

Thank you, Tiffany. You are already a wonderful mother and I know your baby knows it! Please keep me updated. Feel free to private message me if you have questions, need to vent, or even ask for a prayer (I'm already praying though!).

Thank you that means so much to me!! I will keep you updated and in the loop. You are my first friend who knows and has dealt with this and I can't wait to be friends if that is okay with you. I will private message you once I figure out how I hope you are doing well these days and I hope to talk to you soon!!

Monica!! I am heading to Philadelphia tonight!! I will keep you posted Hope you are well!!

That's great news!! I hope they can give you more information about your son and that they can help him!! Stay strong. I didn't go to CHOP because we live very close to Children's National and felt comfortable with their care. But the fetal medicine testing was so nerve wracking! Stay strong Tiffany! Thinking of you!