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Roxanne Smith

Having problems

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Hello everyone. I have never posted anything here but now Im overwhelmed. Need a little bit of help here. I have a 9 year old survivor. She has had asthma and heart issues. Last year we finally got the green flag from the cardiologist. The asthma thing is calm now also. Now we have another issue, She recently (over the last 9 months) has developed EXTREME acid reflux. We've already had the barium test with xray and the results are the the lower sphincter never closes. So we are being sent to a GI specialist but in the mean time, she is vomiting in the middle of the night (sometimes it wakes her up cause it is coming out of her nose), bad belly aches which makes her not want to eat. Everything she eats makes the symptoms worse. Being her mom, watching her go through this, and not being able to help is driving me nuts. So please, anyone with any advice i would greatly appreciate. Thank you so much
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  1. nickiyoung's Avatar
    My son ended up having a Nissen Fundoplication at 13 months. He had severe reflux, and would reflux hours after eating. He was constantly throwing up and not gaining weight. While a Nissen is controversial, several of our drs didn't initially want him having it. However, after his months and months and months of constant gagging, retching, throwing up, etc...they all agreed he needed this. It was one of the best decisions we have made for him. Complete night and day difference. Good luck!
  2. Roxanne Smith's Avatar
    Thank you for sharing. We do have an appt with a specialist next so hopefully we can get this figured out and fixed.