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EllaR

My boy diagnosed with LCDH due date November 1

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My name is Ella. Here is my story and I really need help. Last year i lost my boy at 30 weeks . He is stillbirth due to heart tumor. It's was spontaneous pregnancy after my breast cancer , chemo and radiation. Doctor said I have 1% chance to get pregnant again. We did couple IUI , cycle of IVF and did not work. I almost gave up and on January 15 spontaneously got pregnant . Everything was fine till 16 weeks. At ultrasound my doctor saw stomach in the chest and said its possible CDH and send me in Boston children hospital . At 18 weeks they did MRI, ultrasound II and echo for heart. The heart is moved to right side and look like work very well. Also they evaluate my case and said that my boy has moderate to severe case. His stomach , intestines and part of liver in his chest and lung ratio is 0.8. They gave me low % for survival. I am in shock right now and don't know what to expect . We talk to CHOP and SF and they said the same. SF advise to terminate the pregnancy as if he survive he will have long life health problem and never be healthy . I need support . I can't loose my boy second time. Is anybody had the same case like mine and how your kids doing? I can't stop crying. Thank you
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