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JessQuinn

The waiting game

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:pout: [color=green:1da3b1729f][/color:1da3b1729f][size=18:1da3b1729f][/size:1da3b1729f]
Even though it's only been about a month, it feels like forever since we found out Lily has CDH. I'm thankful for all the information we've received. I feel much better knowing what to expect, well atleast knowing the different outcomes.

However, there is one hurdle we have yet to jump. We're waiting on our amnio test results. They said we should know by Wednesday. All of our plans are up in the air until then. The waiting game....sucks.

I'm ready to know what path the Lord has choosen for our little girl and our family. I see us going up north to PA and giving birth and Lily being treated at CHOP. Then I have moments of weakness, if that's what you want to call them. Where I see us here, waiting to let her go. I don't know how I'm going to make it through that if that is God's plan. How do you let go of a baby who is moving and living inside of you?

I try to keep my thoughts positive. I know we have so many people praying for us. They are very much appreciated.

I'm just ready to know.

I'm scared to know.

So here I wait...
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  1. JoleneEdgar's Avatar
    Hi Jess!!
    I just wanted to tell you that the waiting is hard, almost the hardest. The unknown answers is horrible. Please know I am keeping you close in prayer. If you ever need anyone to talk to about this cdh road please feel free to contact me. I felt comfort in hearing about someone else's cdh road when I was awaiting the unknown. Try to stay positive although it is hard.

    hugz~Jolene mom of my LCDH survivor who is 7.5
  2. ChristinaTennyson's Avatar
    Hi, Jess. The waiting was the worst--when the time came to actually have Nicole, I was calmer than I've ever been in my life.

    The only thing that got me through was believing, really believing, that whatever the outcome, God had a plan. He hadn't caused Nicole's illness, but He knew all about it, and would get us through. A dear friend of mine found out her unborn son had a rare heart defect, and lost him a few days after he was born, about a year before I was pregnant with Nicole. If it's not out of line, she shared this with me:

    Psalm 27:13-14. "I would have despaired unless I had believed that I would see the goodness of the Lord in the land of the living. Wait for the Lord; be strong and let your heart take courage; yes, wait for the Lord."

    The goodness of the Lord isn't always healing the way we think it should be. He will tell you soon, and until then, try to enjoy your daughter now. Lots of prayers and hugs for you both!
  3. JessQuinn's Avatar
    Thank you for the kind words of encouragement! They are very much appreciated.

    Christina-I love that verse! Thanks so much for sharing it with me![color=black:3aa88be9f3][/color:3aa88be9f3]