2014 CDH Conference in Washington, DC in June - All Families Welcome!
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2014 CHERUBS Annual Congenital Diaphragmatic Hernia Conference - June 24th through June 27th in Washington, DC
Our Host Hotel is the Sheraton Suites in Old Town Alexandria.
Book rooms at https://www.starwoodmeeting.com/Star...23508&key=70E5
We have blocked 30 rooms at $189.00 per night for SUITES. These suites include 2 rooms with a King and a Double Sofa Bed. They are non-smoking, have a kitchenette and we also negotiated free breakfasts for 4 people per room. The hotel offers a pool, free airport shuttle, free shuttle to the Metro and is located in historic downtown Alexandria with lots of sites within walking distance. This rate is good for June 24th- 29th only.
Sheraton Suites in Old Town Alexandria
801 North St. Asaph Street,
Alexandria, VA 22314
http://www.sheraton.com/suitesalexandria
CDH MEDICAL CONFERENCE
Never before has there been an all-encompassing conference for the study and support of patients affected by Congenital Diaphragmatic Hernia.
Joint CDH medical and family conference is sponsored by MassGeneral Hospital for Childrens Congenital Diaphragmatic Hernia Genetic Study and CHERUBS The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support.
This conference includes all medical specialties that work with CDH patients including pediatric surgeons, neonatologists, geneticists, dieticians, pediatricians, pulmonologists and others as well as the patients and families affected by CDH to come together to search for the cause, prevention and best treatments of Congenital Diaphragmatic Hernia.
All medical professionals are welcome to attend both the CDH Medical and CDH Family Conferences.
There is a $150 conference fee for medical professionals and a $50 fee per person / $150 per family for families to attend. This includes breakfasts, materials and several events.
CDH CONFERENCE SCHEDULE
Tuesday, June 24th
Pizza Party
Introductions
Wednesday, June 25th - Support Day
Round Table Discussions (parents)
Medical Conference (medical professionals only)
Thursday, June 26th - Awareness Day
Parade of Cherubs
Capitol Hill Meetings
Friday, June 27th - Research Day
Medical Speakers
Medical Q&A Panel
Free Genetic Testing
Friday, June 27th - Capitol Hill Ball
Evening event on Capitol Hill to wrap up the week, have fun, say good-byes
$25 per person
Includes dinner and dancing
Children welcome!
POSTER AND PAPER SUBMISSIONS
Abstracts and posters may be submitted to research@cdhsupport.org by June 15th for consideration.
They will be reviewed jointly by your conference hosts.
PAST PRESENTERS
The following have presented at CDH Family Conferences in past years:
Jay Wilson, MD - Boston Children's Hospital, Harvard University
Patricia Donahoe, Massachusetts General Hospital
Michael R. Harrison, MD - University of California at San Francisco Fetal Treatment Center
David Kays, MD - University of Florida at Gainesville / SHANDS
Meaghan Russell, MPH and Mauro Longoni - Mass General Genetic CDH Study Program
Marc Arkovitz, MD and Julia Wynn - New York Presbyterian Columbia / DHREAMS
Bella Belleza-Bascon, RN, MHA - Texas Children's Hospital / Fetal Center, Baylor College of
Medicine
Kevin Lally, MD - CDH Study Group
Daryl Scott, MD and David Pearson - Baylor Genetic CDH Study Program
Dr. Edmund Yang, St. Louis Fetal Care Institute
Ruben Quintero, MD - Fetal Treatment Program
Priscilla Chiu, MD - Sick Children's, Toronto, Canada
Brenda Slavin, RN - Children's National Medical Center, Washington DC
Because our conferences are confidential to maintain privacy and allow parents to talk freely about their journeys with CDH, we only allow members of CHERUBS to attend. This is also to keep our members safe and medical information private. All CDH parents are invited to join CHERUBS for free by registering at our site at http://www.cdhboards.org/
3 half-days so you have time to see local attractions
Pizza party and parade of cherubs
World renown guest speakers
Great round-table discussions for families of survivors and angels
Participate in CDH Research
Meet other CDH families
Kids are always welcome!
Special needs families often qualify for grants to attend (check with your social worker)
Our conference makes a wonderful family vacation
About The CDH Family Conference:
Expect to learn a lot about Congenital Diaphragmatic Hernia!
Our guest speakers are always the best in their fields, bringing us new information every year!
ALL CDH families are welcome to attend! This includes families of survivors, grieving families and expectant families.
Our conferences include family introductions, round-table discussions, research guest lectures, Q&A sessions and much more!
Each conference runs for 3 half-days; CDH Research Day, CDH Awareness Day and CDH
Support Day.
CHERUBS conferences are planned to be educational, supportive and affordable!
Meet new friends, see old friends and participate in research for various hospitals.
Our conferences are always half days so that families can enjoy local tourist attractions.
Children are welcome and babysitting services will be provided during conference hours.
Our conferences are held near top rated hospitals for safety.
We take photos, we videotape intros and lectures but we ALWAYS respect member confidentiality and privacy!
Join in our new Parade of Cherubs at every conference!
Join in our balloon releases at every conference!
We have a pizza party on the first night of every conference.
Kid's get a chance to learn the CDH kids song and perform on the last day of the conference.
CHERUBS does not charge a conference fee.
For safety and privacy of our members, you MUST be a member of CHERUBS to attend. You
may register for free at http://www.cherubs-cdh.org/members
Many families of survivors are eligible for grants to cover travel expenses to medical conferences. Ask your child's social worker for more information..
