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Erika Welcome.
Yes we are trying to get CDH awareness out there.
I believe that on page 4 or 5-Kristin put together a list of all the people who we are writting to get CDH awarenedd out there in the public.
We would love it if you wrote letters. The more letters we send out-the better.
Thanks for helping us to get CDH awareness out there.
We are happy you are here. If you have any questions-please don't hesitate to ask.
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Well, 20 minutes later I see that the thread we are on is the oprah show one....duh~goin' to take a nap :-)
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Got this email from AJ (ATV Magazine). I am TOTALLY EXCITED!!!!!
Hi Stephanie-
I talked with the Editor this afternoon and he was very happy to help out.(I was able to talk before we both left the country).
I will get the information posted foy you @www.ATVMAG.com. We have one of the largest ATV wedsites in the world so you should see a good response from that. I will need a little time to set that up as I'm going away but I will get it done as soon as possible.
As for the magazine coverage I am going to check our production schudule and see when our next issue gets printed and mailed, the editor seems to think it may be very close to your event date so I will have to do some research and ask the production department is we would be in time for that issue. I have approval to get you into that magazine though as long as the magazine isn't mailed after the event. I will look into this and get you a firm answer as soon as I can.
If I am lazy with a response over the next couple weeks please forgive me as I will have limited access to e-mail.
Thanks, AJ
My response to him:
AJ-
I cannot express to you how Thankful I am to you for helping us out with this ATV ride for CHERUBS. It is wonderful that you are doing all of this extra work. It touches my heart and I appreciate it so.
I look forward to hearing from you when you have the chance.
Again, please have a safe and fun trip.
Stephanie
So I hope the magazine doesn't come out before the ride. I am thinking that if it does-he will put an article in after the event. He seems like a very considerate man.
I am very pleased.
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Thanks for the welcome - it makes such a difference to know I am not in this alone - I just deal with all of this a little differently than my darling husband!:-)
I did write to the Oprah show awhile back when someone on the listserve posted that they were going to do a show about losing a child. I never heard back but I will write again! :-)
And yes, it is beautiful here - just can get rock fever sometimes - small island. Just the other day I overheard my husband's aunt being asked if Ella was our only child and she said yes. I have been kicking myself ever since that I didn't speak up - but my Mother pointed out (when I moaned to her about it!) that sometimes you just can't change ignorant people!
And I am way overdue a trip to Target!!
Hey how do you put a picture in your profile, so that I'm "no avatar"!
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Hi Erika, so great to have you here!!! :)
Avatar - click on Profile on the yellow line under the photos of the kids up top. All your Profile info is there, and that's where you add a photo as your avatar. :)
Stephanie, that is so great, YEAHHHH!!!!!
Ok, everyone, since this thread is now 11 pages and talking about all sorts of media stuff, I'm going to start a new thread...
http://cdhsupport.org/members/viewtopic.php?p=5697#5697
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Oprah show
Sounds like a good idea trying to see if Oprah would do a show on CH.
my son is in chicago childrens memorial. we live a hour from there.
I own a website competition called the Fantasy Fights. http://www.webcompetition.net/
I have info posted on the Index page, The FF get's a lot of hits =)
I sent a email to everyone in my address boook also asking them to spread the word.
Hugs
Dakota's Mom Beverly
http://dakota-cody.com/
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Your welcome =) i wont be back on till later this evening, we are going to go see Dakota, I am getting so sick of this hour drive everyday!!
and the gas we go though!!! But, once we are there by him. Its all worth it. Hugs
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WOW this topic really took off. You ladies rock. I'm still sending Bryston's story in where ever I can.
Anyone got the Grey's anatomy link handy? I'll keep looking for it too.
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Wow, im suprised no one's heard back. I figured that this would be somehting the Oprah show would jump on. I'll join you and write something up. Maybe if enough of us bombard them we'll get some attention :)