-
Tracy, you have to love rumors! Interesting though when I tell "outsiders" about CDH I often get "is that when the intestines are on the outside?" Seeing your post made me look it up that condition is called
Gastroschsis.
I hope we can see the article about her on line.
-
The baby next door to us in the NICU had Gastroschsis and I got really friendly with his parents because he was in there for a while too. He had a series of surgeries to slowly put back the intestines in and he recovered very well. He had no problems breathing, but he had problems with feeding and they had to introduce food very, very slowly. He went home a little before Dakota. It was very interesting what you learn in a NICU!
-
Tracy - looking forward to seeing the article! How exciting!
Yes, there was a baby in our NICU also with Gastroschsis who was only in the high level NICU for about 2 weeks and then was gone by 4 weeks. She seemed to recover very well from her series of surgeries. She certainly didn't look too good for a while there but seemed to recover pretty quickly. Especially compared to Andrew who was literally in critical condition for like 6 weeks straight!! Also kind of funny - one of my sister's friends had a baby born with this as well just before Andrew and her her baby recovered very quickly too. When Andrew was born with CDH, she thought it was something similar and told me how quickly Andrew would get better and that Gastroschsis was kind of a "sister" defect to CDH. This was before we knew too much about CDH. Well, we quickly found out she was TOTALLY wrong!
-
You know what happens when people assume... HAHA. And yes, I'm sure the article will be online. If not, I'll be scanning it. =) I haven't heard back from the editor yet. I think if I don't hear from her by Monday I'll email her back, just to be sure she hasn't forgotten about us.
-
Tomorrow, at 11am, I'll be meeting a reporter for the paper so she can interview me. I am SO EXCITED! The article should be running on Thursday, March 3rd. I'll keep you all posted as it progresses.
-
We need to Grt the Word Out... GREAT NEWS !!
-
Great News.. We Need to Get The Word Out on CDH
-
-
The date of the article has been changed from March 3rd to March 17th-ABSOLUTELY PERFECT TIMING! =)
-
Perfect timing to come out the day before her birthday!! Look forward to reading it!!